New to site feeling light headed

[Cas61]

Hello, I am new here. I was diagnosed in August 2015 with cll. I'm 56 years old. Glad I found this site it helps me alot to deal with it. I noticed lately my finger nails are not growing, so I started taking biotin. Also I have been getting light headed and noticed some of you posted you had this also. Is this common? Thanks for the support.

[Hidden]

Hi Cas61

Welcome to the group. Light headedness can be caused by a number of things stress being one of them which with a long term illness looming over you would be quite common.

Have you had your blood checked recently? Your haemoglobin level could be one possible cause or high or low blood pressure.

In answer to your nail question I did suffer this and strange as it sounds it was related to dietary issues. More and more people on the site are starting to realise certain intolerances to foods and the many side effects caused by this.

It’s important now more than ever to correct your diet and eliminate anything contributing to stresses on your immune system.

I altered mine prior to treatment and it helped a great deal.

Stuart

[Cas61 in reply to Hidden]

I do have food allergies. I am gluten free now for two years. I recently lost my husband. So It could be both of these things. I am getting my blood work done next month and my last result my numbers were pretty good wbc 11. I'm in watch and wait stage 0 right now. But my wbc has gone up to 17 before. So it's a rollercoaster.

[Hidden in reply to Cas61]

I’m sorry to hear that. Obviously losing someone close to you your feelings and emotions will be all over the place and with Cll on top is probably exacerbating things.

There’s not a great deal anyone can do to help with grief it’ll just take time and support which your family and others on this site who’ve been thru similar heartache I’m sure will help you with.

If your interested ( in your own time ) I could offer you a few tips in regard what I’ve done to find certain food triggers and identify and eliminate them.

It’s good your blood works being done soon as you can rule out anything untoward but it might also be a good idea to mention to your local doctor your situation if your struggling with sleep and stress as these things alone can cause you to feel unwell.

Stuart

[Cas61 in reply to Hidden]

Thank you, I appreciate that. I'm thankful I have my kids and grandkids to help get me through this. It has been the worst thing I've ever gone through. If the light headedness continues I will call my doctor.

[Hidden]

Hey Ya Cas,

Welcome to our little club. I actually feel the opposite, my fingernails and toenails are growing faster than before CLL. I don't know if that is actually true...but it feels like it to me.

Getting light headed can be a sign of low blood pressure and you should have it checked....I get that a couple times a week since my doctor put me on blood pressure RX...when I stand up I get all whoooooaaaaa, and light headed.

There are other things that cause you to feel light headed....breathing helium and talking in a squeeky voice....if you are doing that make sure you tie a string to your leg so you don't float away.

Scott

[Cas61 in reply to Hidden]

Ok thanks for letting me know. I will definitely keep that in mind and watch it.

[Jacksc06]

Hi welcome to the family. A great source of knowledge & support.