I name is Todd, I am 52 years old and live in Florida. I was diagnosed almost exactly 10 years ago from lab work from what I thought was a routine physical. My brother died of CLL which transformed into Richters in December 2004 so I am particularly sensitive to that possibility. I am under the care of Dr. John Byrd at Ohio State University, who I visit with once or twice a year. I also have a local general practice Doctor who communicates with them
Although I am unmutated, my CLL not been as aggressive as some. My WBC is around 70,000, my hemoglobin around 12 But recently my platelets have dropped to around 108,000.
I have struggled with repeated bouts with pneumonia. Last year my pneumonia transformed into ARDS. Were it not for a timely intervention and transfer to UAB, I would not be here.
More recently, I had a bout with bacterial pneumonia and a plethora of aggressive antibiotics. I have read where some of those antibiotics cause drop a temporary drop in platelets
A month later, I am dealing with low-grade fevers which peek around 6 PM and mysteriously disappear overnight. I am also fatigued and have a strange itching sensation. Tylenol does not reduce the fevers.
I am not nearly as educated as some of you are on understanding CLL. It flies above my head. I am searching for a better understanding