Hello my name is Donna. 56 yrs old, CLL diagno... - CLL Support

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Hello my name is Donna. 56 yrs old, CLL diagnosis 2002, started FCR in Jan.

8 Replies

I was looking online for info on neurological side effects of FCR because I keep feeling "brain zaps". I found this page and signed up. So anyone else experience thos kind of side effect? I finished round 4 3 weeks ago and the symptoms are lessening a bit, but in the evening I still feel off on the head 😊

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Cllcanada profile image
CllcanadaTop Poster CURE Hero

Welcome.. sorry to hear this... you had a nice watch and wait, you were diagnosed very young!

Yes I have had many brain zaps... mostly caused by treatment... generally they are refered to as 'chemo brain' and can take a number of manifestations...

Be certain to tell your treating doctor as soon as possible

From the Mayo

mayoclinic.org/diseases-con...

~chris

in reply to Cllcanada

Thank you Chris

in reply to

This is actually more like a bug zapper in my brain and its very uncomfortable.

Cllcanada profile image
CllcanadaTop Poster CURE Hero in reply to

Call your doc tomorrow... does it effect your movement, vision ... like an electric spark?

Are you on other meds or supplements...

Have a look at this page

blog.cognifit.com/brain-zaps/

Emcee1 profile image
Emcee1

Congrats joining a fantastic group!

JuciyJ profile image
JuciyJ

I had those after the first BR treatment. They happened less as the treatment ended. I finished in Jan 18 and I don't recall having any since then.

Sucee profile image
Sucee

Hi, sorry to hear you're experiencing these sharp pains, that zap you out of the blue! I experienced them too, during FCR (completed end of October last year). I can't remember when they stopped after FCR, but I don't get them now. I hadn't actually thought about them for a while until I was reading your post! Hope this provides comfort to you...it's an awful zapping pain that used to take my breath away.

Hope all is going well for you.

Best wishes :-)

chinchilla profile image
chinchilla

Hi DGail,

I too experienced quick 'zapping' sensations during FCR and afterwards. They have gone now. I didn't mention them to my doctor since the pain didn't last long and I put it down to yet another side-effect of chemo.

The 'chemo-brain' is, unfortunately, still there after almost two years and very annoying it is !

All best,

Chinchilla

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