Saw my consultant today and, unsurprisingly (given my recently enlarged spleen and neck nodes, and a downturn in my HB and platelets), he is suggesting that it is chemo time for me. He wants to start me in early November, after my current chest infection has settled, and he's had time to run cytogenetics etc.
Obviously, I'm doing my homework in the interim. We talked about the CLL10 trial, but he thought that it may now be full...he's checking that for me, but I thought I'd ask here amongst the biggest group of experts I know!
If anyone knows, or can point me in the direction of a Doc at any of the centres running the trial, I can help my consultant on my own behalf. It is very difficult to find information about the trial's progress anywhere online.
Mikey - I know you are on the trial, and you said recently that you thought it would be full by Christmas - can you tell me where you got that information please...I think I need to move very quickly, if it's not too late already to get a shot at the ibrutinib arm ...I've edited this post though because I think you are on Resonate? If so - that's not appropriate for me...but maybe you have some info anyway, being at Bournemouth
Hope everyone is doing okay. x