CLL Support Association
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The CAR-T Killing Frenzy is Done: Time to Celebrate Being Cancer Free

Hi,

It’s been very very tough, but I got what I came to Seattle for.

MRD- negative in the blood and the marrow and nodes almost completely back to normal.

Cancer free.

It is wonderful news, but has come with some cost. Beside the pain and fatigue, I developed a small asymptomatic blood clot in the lung, so I give myself tow shots of Lovenox every day.

Small price to pay.

The details are on my blog: cllsociety.org/car-t-blog/

I am giddy with joy. Forget my own advice to under react. Not today. Tomorrow I will calm down. Today I am celebrating.

Stay strong.

We are all in this together.

Brian

cllsociety.org

80 Replies
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I have been following your story. Thank you for sharing you are an inspiration who gives hope to others. Wishing you all the best for your recovery.

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Great news Brian, onwards and upwards 😎

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Fantastic! I'm so thrilled for you, Patty, and all of your family, friends, and extended CLL family. We are all relieved for you and celebrating for you, each in our own way!

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This is an Absolute Victory in all aspects!!!!!!!🎵🎶🥁🥁🥁

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Brilliant joyful news. All & everyone here were praying for this & these have been answered. Cancer free - long, long, long may it continue and yes time to celebrate !!! Jaan 17

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🎉🎉🎉🎉🎉🎉🎉🎉🎉🎉🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🥂🥂🥂🥂🥂🥂🥂🥂🥂🥂🥂

Congrats Doc, when you have faith anything is possible!

Jeff

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WONDERFUL! Absolutely brilliant news! Celebrate like crazy..you've earned it. :)

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You certainly deserve it! Enjoy every moment.

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YIPPEDY DOO! WONDERFUL NEWS! :-) :-) :-)

Rejoicing with you...

Paula

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Super duper news Brian.

So pleased.

Sue

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Wow! Definitely a ‘sitting on top of the world’ day. So very pleased for you. It must be a wonderful feeling.

Peggy 😀😀.

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Brian you are an inspiration. You have given us all hope. Have a wonderful celebration.

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Great news and inspiration for all of us!

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Such wonderful news!!

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You have every right to react. I hope your next adventures are nothing but fun filled. You have been very brave to give this treatment a try and a pioneer for our community. Thank you.

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Thats great news, very happy for you. You deserve to be giddy for more than a day.

Chris

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Congratulations hardly conveys it. I am truly so excited for you. Your posts and blogs give so much encouragement. Never underestimate the hope you give people. Coincidentally I believe I sat next to you in the waiting area at OSU last Dec. I was not sure it was you until they called your name. Next time I will say hello.

Ed

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Fabulous news! Thank you so much for all you have done and continue to do for the CLL community. We are all in this together as you say, and now we all can celebrate along with you and yours. So deeply appreciative here in Massachusetts.

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Phenomenal news!!! So happy for you and your family, Brian! We are all celebrating right along with you 😊

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Dr B!

Fabulous news!

Doing my happy dance!!!

&@&@&@&

Thank you for all you do for our community.

*Stay strong*

-Diana

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I hope every day you feel stronger and more joy. I am thrilled, beyond thrilled you have made it through and found life waiting. Home is going to seem much sweeter. Are they letting you get out of there anytime soon?

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End of next week.

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Awesome!

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Hi Brian absolutely fantastic news, you deserve your enjoyment. Thank you for sharing Your journey. Enjoy.

Ann 👍😀

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I am giddy as well!!!!! I think everyone on this forum has been waiting with bated breath to hear this news! We will all be celebrating with you today! Congratulations! And thank you!

Paula

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I have been following your journey daily and am ecstatic. What courage and determination you have shown. Thanks for paving the way for the rest of us. A heartfelt thank you for daily sharing your journey so we could cheer you on. Sally

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OK, have opened this up and reread it x3. I have been struggling a bit the last day or two and your news is just so happy! And encouraging!

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Very good news. Wishing you the very best.

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Oh do a little dance of joy Brian!

In fact let’s start a cyber conga and we’ll all join in to celebrate this wonderful news! 🕺💃

Newdawn

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grateful for the "negative" results and your positive outlook

grateful for your joy and your family's including your CLL family

grateful for all you do for the CLL community

and most of all grateful to the awesome brilliance of doctors & scientists that pioneer these awesome, brilliant new therapeutic breakthroughs.

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absolutely fantastic news!! we are all celebrating with you🥂

Sandy Beaches

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Wonderful news! Definitely time to celebrate🎆🎇🎉

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Fantastic news!

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Fantastic news, I'm so happy for you

Elle xx

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Such AWESOME news, Brian!!! It lifts us all up. Good for you.

kim

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I am so happy for you. You give us hope and inspiration. Thank you.

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I am overwhelmed and so appreciative of all the kind and encouraging replies. I know in my heart that this journey was made easier and my chances for this wonderful outcome was increased by all the kind notes, words of encouragement and prayers that I and my family received. I can't begin to thank you all adequately and share what being part of this community has meant to me.

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So happy for you and your family. I have read your blogs on this site but never knew you were a Dr.?? Congratulations !!!! Prayers go out to you and your family. Celebrate,do a jig,laugh , scream and enjoy your health. You deserve it. I have been on imbruvica for 8 months and feeling much better. Wow 69 months now I have hope that maybe I will be fortunate enough to go that long. As long as I am able to get continued funding for the meds. This is a struggle for all of us . God Bless you 😘❤️🙏🏻👏👏

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Wonderful news, Brian! Prayers for you going forward. Everyone rejoicing with you today!

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Congratulations you did proper choice in therapy. Take it easy,do lots of rest.Thank You for share. We are all in it together as you said.SZR

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Congratulations! This is fabulous news and can only imagine how you and your family must feel to have the CLL burden lifted from you after shouldering it for so long. It must feel positively euphoric!

Thank you so much for sharing all of your experiences with the CLL community and their families so we can learn, be encouraged and know that we are not alone.

Personally, I think you're entitled to at least one more salmon dinner before you leave Seattle to celebrate (I know I would but then I've never been too good at sticking to a diet.)

Hope the remaining part of your recovery comes soon!

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Raw vegan. I hope you found some interesting new places to eat! Still looking for your cookbook, or maybe it should be called a guide to a raw vegan life, and maybe Patty should actually be the one writing it. Still on a high after reading your latest post! Hopefully we will all have less complicated lives in 2020 (or is it 21?) and can meet up at the next Canadian conference. I was hoping that the San Diego Conference would become an ongoing event, but off years from the Canadian Conference. Maybe?

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Brilliant news - well done.

Louise :)

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Mazel tov, Brian. You and Patty look great.

Welcome back to the world after your ordeal.

May you go from strength to strength.

leah

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Great news! Very inspiring!

Many thanks for sharing your story.

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Wow! Thanks for the fantastic news and for sharing so much with us. Wishing you nothing but the best.

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That is fantastic news, so happy for you Brian. Gives us all hope 😄.

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Mazel tov. Now the wait to see how long it lasts

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I am very happy for you Brian!

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Wonderful news , 👍🏻👍🏻👍🏻👍🏻👍🏻👍🏻👍🏻

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Great news

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Congratulations Dr K! Since beginning my CLL journey, you have been an inspiration at every turn. Documenting your journey, through all your have experienced has to have been a struggle at times. We do appreciate it! Hopefully you will never have to deal with the CLL again on a personal basis!

Thoughts and prayers still with you.

BeckyL USA

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F A N T A S T I S T I C ! ! ! ! My wife had aggressive follicular lymphoma and progressed rapidly after R-CHOP, BR, Ibrutinib, and Idelalisib/rituximab. She is in an NIH CAR-T clinical trial, received a CAR-T infusion on March 2, 2016. and has been in complete remission for 26 months. Life is great.

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Brian, I am ecstatic for you! You confronted the monster head-on and came out victorious on the other side. Thank you for thinking of us all throughout your journey; we have certainly been thinking of you. Sending you much love and appreciation for all you are, do, and give.

Cynthia

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Yet again you are an inspiration to us all! Beaming good thoughts for a not-too-difficult recovery!

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Great news!! Mazel tov! And thank you for sharing and all you do.

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Brian, what a wonderful way to start my day here in PA, celebrating your news of successful treatment leaving you cancer free! Even with all you endured and continue to endure as side effects, you sound so positive and ready to take on the world. You are right, we are all in this together and how good it is for all of us in this community to read your success story.

Rock on, Brian!

Wishing good days and good health to all.

SMS

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Been following your journey and wish you all the best. Will the blood clot eventually dissipate?

Yes we are all in this together,

Best Regards,

Dianne

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I am absolutely thrilled for you and your family! Thank you for posting during your treatment.

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Great news, Brian! Thanks for sharing your journey. And I agree it's one day to push moderation aside and celebrate joyfully!

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You are a great contributor Brian. May you be blessed with strength, joy, and consumed with peace.

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🙏🏻🤗👍🏼❤️

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Fantastic news!

Fran 🤗

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Congratulations my brave hero! Thank you for sharing your remarkable journey to MRD negative. Wishing you best of luck

Vasso

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Congratulations Dr. koffman, i hope this will be the cure for all of us one day, without all the dangerous side effects. 👍

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Outstanding, you deserve this. Thanks for being here and showing the way.

Owen

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I have been following since your journey began there....when so many lose their battle, it is great to see a warrior like you victorious! Brought tears to my eyes! "We are all in this together!" Celebrate!!!!

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Hi BK

I have followed your story and I am so happy with your results.

It is inspiring to read this.... well done mate, you inspire hope and made me feel good today.

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Happy and excited for you!

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I bet that champagne tasted good! Fabulous news, and huge congratulations.

Best wishes from New Zealand :-)

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Wonderful news! Keep on smiling and never mind the pin cushion effect of those jabs, what's a bruised tummy after the journey you've been on. Thanks for all your posts.

Maureen UK

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Happy for you, Brian. Very good news. Stay happy, stay well. Sounds like you're on your way. Carole

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Wonderful news Brian! So happy for you! You deserve it!

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Congratulations! That's such great news to hear.

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From England - you are an inspiration. Well done and your medical team.

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Time to celebrate! Hugs!

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Congratulations for the new "cancer free" life. This is all what we want in this blog.

I hope the CAR T therapy will be available very soon to all of us at an affordable price.

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My heart explodes with happiness for you!!! I was in Seattle last week and said a quiet prayer for you. Thank you for sharing.

Ash

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Thanks

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You are an inspiration. Awesome.

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