It’s been very very tough, but I got what I came to Seattle for.
MRD- negative in the blood and the marrow and nodes almost completely back to normal.
Cancer free.
It is wonderful news, but has come with some cost. Beside the pain and fatigue, I developed a small asymptomatic blood clot in the lung, so I give myself tow shots of Lovenox every day.
Fantastic! I'm so thrilled for you, Patty, and all of your family, friends, and extended CLL family. We are all relieved for you and celebrating for you, each in our own way!
Brilliant joyful news. All & everyone here were praying for this & these have been answered. Cancer free - long, long, long may it continue and yes time to celebrate !!! Jaan 17
You have every right to react. I hope your next adventures are nothing but fun filled. You have been very brave to give this treatment a try and a pioneer for our community. Thank you.
Congratulations hardly conveys it. I am truly so excited for you. Your posts and blogs give so much encouragement. Never underestimate the hope you give people. Coincidentally I believe I sat next to you in the waiting area at OSU last Dec. I was not sure it was you until they called your name. Next time I will say hello.
Fabulous news! Thank you so much for all you have done and continue to do for the CLL community. We are all in this together as you say, and now we all can celebrate along with you and yours. So deeply appreciative here in Massachusetts.
I hope every day you feel stronger and more joy. I am thrilled, beyond thrilled you have made it through and found life waiting. Home is going to seem much sweeter. Are they letting you get out of there anytime soon?
I am giddy as well!!!!! I think everyone on this forum has been waiting with bated breath to hear this news! We will all be celebrating with you today! Congratulations! And thank you!
I have been following your journey daily and am ecstatic. What courage and determination you have shown. Thanks for paving the way for the rest of us. A heartfelt thank you for daily sharing your journey so we could cheer you on. Sally
I am overwhelmed and so appreciative of all the kind and encouraging replies. I know in my heart that this journey was made easier and my chances for this wonderful outcome was increased by all the kind notes, words of encouragement and prayers that I and my family received. I can't begin to thank you all adequately and share what being part of this community has meant to me.
So happy for you and your family. I have read your blogs on this site but never knew you were a Dr.?? Congratulations !!!! Prayers go out to you and your family. Celebrate,do a jig,laugh , scream and enjoy your health. You deserve it. I have been on imbruvica for 8 months and feeling much better. Wow 69 months now I have hope that maybe I will be fortunate enough to go that long. As long as I am able to get continued funding for the meds. This is a struggle for all of us . God Bless you 😘❤️🙏🏻👏👏
Congratulations! This is fabulous news and can only imagine how you and your family must feel to have the CLL burden lifted from you after shouldering it for so long. It must feel positively euphoric!
Thank you so much for sharing all of your experiences with the CLL community and their families so we can learn, be encouraged and know that we are not alone.
Personally, I think you're entitled to at least one more salmon dinner before you leave Seattle to celebrate (I know I would but then I've never been too good at sticking to a diet.)
Hope the remaining part of your recovery comes soon!
Raw vegan. I hope you found some interesting new places to eat! Still looking for your cookbook, or maybe it should be called a guide to a raw vegan life, and maybe Patty should actually be the one writing it. Still on a high after reading your latest post! Hopefully we will all have less complicated lives in 2020 (or is it 21?) and can meet up at the next Canadian conference. I was hoping that the San Diego Conference would become an ongoing event, but off years from the Canadian Conference. Maybe?
Congratulations Dr K! Since beginning my CLL journey, you have been an inspiration at every turn. Documenting your journey, through all your have experienced has to have been a struggle at times. We do appreciate it! Hopefully you will never have to deal with the CLL again on a personal basis!
F A N T A S T I S T I C ! ! ! ! My wife had aggressive follicular lymphoma and progressed rapidly after R-CHOP, BR, Ibrutinib, and Idelalisib/rituximab. She is in an NIH CAR-T clinical trial, received a CAR-T infusion on March 2, 2016. and has been in complete remission for 26 months. Life is great.
Brian, I am ecstatic for you! You confronted the monster head-on and came out victorious on the other side. Thank you for thinking of us all throughout your journey; we have certainly been thinking of you. Sending you much love and appreciation for all you are, do, and give.
Brian, what a wonderful way to start my day here in PA, celebrating your news of successful treatment leaving you cancer free! Even with all you endured and continue to endure as side effects, you sound so positive and ready to take on the world. You are right, we are all in this together and how good it is for all of us in this community to read your success story.
I have been following since your journey began there....when so many lose their battle, it is great to see a warrior like you victorious! Brought tears to my eyes! "We are all in this together!" Celebrate!!!!
Wonderful news! Keep on smiling and never mind the pin cushion effect of those jabs, what's a bruised tummy after the journey you've been on. Thanks for all your posts.
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