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CLL Support Association
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Swimming, joy and sadness and MRD negativity

Hi,

I got the great news that I am still MRD- more than 5 months post CAR-T

For my reflections on this and the rollercoaster ride that is CLL and more details about my results, please take a look at my blog post: cllsociety.org/2018/08/swim...

Stay strong.

We are all in this together.

Brian

cllsociety.org

11 Replies
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I loved watching Stan's swim. Well I did dose off for some of the middle. What an inspiration. TheFlyer, I'm sure, will be back doing some incredible endurance test on our behalf, next. These people who work so hard to support patients and research are true angels on earth.

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Thank you for all you do. Your blog posts always share a hopeful message while never shying away from the harsh realities of CLL. That's quite a gift!

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After everything you went through, you deserve to feel well for a very long time Doc.

Jeff

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Great news Brian.

Peggy 😀

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Dr. Koffman,

I am so sorry for the lost of your friend. People, like yourself, who dedicate so much of their lives fighting for a cure for CLL are in the difficult position of dealing with the loss of a friend multiple times. Many long-timers on the forum, who are very active in the CLL community, share this unfortunate experience with you. I know it strengthens all of you to resolve to fight on. For this we are grateful.

Thank you for keeping us informed. It is always a treat to read when someone has good news, which inspires the rest of us. I particularly appreciate the details - there are always nuggets of information I can use!

All the best,

D.

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Inspirational. Great to hear you are doing so well.

I've been put off swiming by the infection risk (bad decision). I'll rethink that, particularly as the summer is drawing to a close. Autumn first though, my favourite season.

Ernest.

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Dr. Koffman, my sister and I both have CLL. She was diagnosed in 2001, and after her third therapy, venetoclax + obinutuzumab, she has no detectable disease. I am newly diagnosed this year, and just beginning watch and wait. We have wondered if patients who have CAR-T therapy will ever have normal B cells again.

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If the CAR-T persist, probably not

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I love to see you posting here Doc and that you are doing well.

I read the results of the survey you presented at the CLL conference. It was at the Cllsociety website. Incredible. It’s just amazing how many people were told that they have “the good cancer “.

Fools.

Jeff

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Thanks

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Dr Brian!

Love having you back to *full throttle*!

Your blog update was wonderful.

Thank you for sharing your inspiring journey and for all of your personal kindness.

I’m beginning to believe in *karma*.

-Diana

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