Massage: I'm wondering if anyone can recommend a... - CLL Support

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Rebrin-UK profile image
11 Replies

I'm wondering if anyone can recommend a massage therapy organisation in the greater Manchester (UK) area?

I was given a voucher by my partner for The Manchester Therapy Center for a 90min Birthday massage, unfortunately when I filled in the obligatory medical history form and informed them that my cancer was CLL they declined to redeem the voucher, claiming they didn't have staff trained to deal with it as it involved "the lymph system".

I was obviously, in turn, embarresed / annoyed / dismayed by this.

We have obtained a full refund and I am casting about for an alternative venue.

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Rebrin-UK profile image
Rebrin-UK
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11 Replies
Psmithuk profile image
Psmithuk

When I asked my consultant if I could have a massage he said yes, although I didn’t have much in the way of swollen lymph nodes (still don’t). Good luck with finding someone, as I love a decent massage, so relaxing. (I’m miles away so can’t help you I’m afraid).

Rebrin-UK profile image
Rebrin-UK in reply toPsmithuk

I thought it wouldn't be a bother either. I did explain my only symptoms were elevated WBC and some night sweats. Thanks for the good wishes, I'll let you know how I get on.

MsLockYourPosts profile image
MsLockYourPostsPassed Volunteer

Ask your doctor. There are therapists who are trained to help cancer patients.

Rebrin-UK profile image
Rebrin-UK in reply toMsLockYourPosts

That is an idea, I think I'll contact my hæmatologist early next week, I suppose I didn't think of it myself as it seems a "trivial" thing to bother them with.

Cheers.

Ellieoak profile image
Ellieoak

I’ve been a massage therapist since 1975 and a Naprapath since 1997. I have no problem getting a massage. A basic Swedish Massage does nothing to hurt the body. Because CLL is in the blood and bone marrow there is nothing that is going to make it spread.

Rebrin-UK profile image
Rebrin-UK in reply toEllieoak

So you've got a foot in both camps, are you still practicing?

Ellieoak profile image
Ellieoak

Yes I am still practicing. I have to spread my patients out a bit but I still see 15-20 patients a week.

Rebrin-UK profile image
Rebrin-UK in reply toEllieoak

Where are you based?

Any chance of an addition to your books?

Peggy4 profile image
Peggy4

A massage does me the world of good. I go to our excellent local small cancer care centre (charity run). I live in a very rural area so we are very lucky to have it. All complimentary treatments are not charged for so those who can pay do so by putting money in a box (gift aid if wished). There is no set fee. This is also available to carers and family. They also do courses on mindfulness, tai chi and many many more. Obviously, it relies heavily on fund raising and grants. If I ever retire I would love to be able to go more. At the moment it’s confined to school holidays. Hope you get sorted, it will be so beneficial.

Peggy 😀

Ellieoak profile image
Ellieoak

I am in Chicago, Il. On the northwest side.

Rebrin-UK profile image
Rebrin-UK

So that's a no then, 😂 ah! well it was worth a try. Keep up the good work.

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