Hello to all. A little background.I am in a clinical trial, at MD Andersen , that combines Ibrutinib with Venentaclax and Alpurinal. So far everything has been unbelievable , My wbc went from 414,000 to 4.2 and everything else is at or well within the normal range. With that being said, recently,I have experienced two severe attacks of gout( never had it before) on my left big toe. My Uric acid levels are well within range .After the first episode,I've been watching my diet to element any contributing factors (red meat, sugars, high corn starch products, cheeses, etc)as well as almost floating from all the water I'm drinking .My Dr says that this has happened many times before and has prescribed a course of steroids (can't take ibuprofen or similar pain killers on the Ibrutinib)since the Colchicine( they prescribed) only provided temporary relief.
My question is, has anyone else experienced anything similar ? I'm concerned about starting the steroids as I don't want to be "tethered" to them in the future as this trial runs for two years.
Any feedback will be greatly appreciated.