CLL Support Association
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Bloated stomach

I have had CLL for 4years.

I have had this bloated feeling now for before Christmas. I have had some ultra sound done as I could feel a lump in my stomach just above the navel.

Has anyone else had this experience? as I am not liking what the outcome maybe.

Also I have had the terrible chest infection which I can’t seem to shake.

The doctor has given me antibiotics ( Clarithromycin) & also (Panafcortelone) & it doesn’t seem to be helping.

Any words of advice?

Thanks

10 Replies
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Hi Copjen,

Have you had the results of the ultrasound or are you still waiting for them? Sometimes an enlarged spleen can cause the tummy to swell and look bloated. Sounds to me like you may need a more precise look with a CT scan. The lump above the navel could even be a hernia.

If your chest infection isn’t clearing with the antibiotics, please push your doctor for a referral to a lung/respiratory specialist because this needs more careful analysis as to the cause.

Best wishes,

Newdawn

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Thanks for your help.

I have had an ultra sound on my upper abdomen & on Monday I will be having one on the lower abdomen & will go to the doctor for results on Tuesday.

The doctor had an X-ray done of my chest which again will get the results on the same day.

I have of course been thinking the worst of outcomes so just wanted to hear from others what they have experienced

I live in Australia & so our medications probably have different names to what you use in the USA

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Hi Jen,

I totally understand your fears Jen. I had an ultrasound last week and a full body CT yesterday for similar concerns and am too awaiting results. I’m in the UK not USA.

Just hold onto the thought that enlarged nodes are very much part of the CLL landscape as are chest infections. They’re not unusual or unexpected.

Hope we both get good results.

Best wishes,

Newdawn

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Thanks again.

It certainly is great to have others to talk too who know what you are going through.

I had never heard of CLL until I was diagnosed but didn’t realise this sight was available until my daughter sent me the link yesterday.

All the best with your results back there in the UK.

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Copjen , hang in there. There are many of us on this site who are standing with you. There is a lot of good information on this site. I live in the USA but have relatives who live down under. My mother was a British war bride who came to America with my father who served in the UK during WW11

james

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I have a perpendicular protrusion on the left side of my abdomen. A CT scan a year ago showed a diffusely enlarged spleen so, I'm thinking that is what is causing the bulge...my GI doctor says the perpendicular bulge is the descending colon but it could still be (the bulge) from the enlarged spleen. I too have had sinusitis and bronchitis and a horrible cough for 4 months.

Best Regards,

Dianne

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Hi Copjen, I am from the Gold Coast, diagnosed a year ago but appears on my blood reports for 9 years, go figure. I try to stay positive, stay working where I don't have to give it too much thought. This is a great community. Best wishes.

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I have also had the bloated stomach problem, with mine developing in to daily feelings of nausea after every meal, my haematologist gave me some metoclopramide tablets to help with the nausea and after a month everything settled down again so not sure if I had a bug or if it was cll related all I do know is that it wasn’t very nice. I hope you get your symptoms sorted out soon as.

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Hello Copjen, I have had CLL for 8 years. I have had abdominal problems for many years

and have been diagnosed with irritable bowel syndrome. I feel a bulge near my navel when

my ibs is "playing up". I wonder whether this could be your problem. Hope you get things

sorted out. Parramatta.

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May have to look into that but will wait & see what my latest results show first.

What type of foods do you have to avoid?

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