You may have noticed in my earlier post that I gave a time that my husband had been receiving Ibrutinib, which I think I said was a little over 3 years, I was wrong. At a haematology visit yesterday my husband was told he has been on it 4.5 years, at first 3 tbs per day, but now (and for the last 18 months) just two per day, due to side effects. Yesterday he was told, there is absolutely no cll at all in his blood tests, no enlarged spleen, no lymph glands, however, a time may well come when Ibrutinib may not be effective and he could revert to having cll once more. At such time he could be offered another drug, name I overlooked, but just for now, other than having four collapsed vertebrae which have severely restricted his ability to 'potter around the garden' walk around the village etc., and he is totally dependant on more pills (morphine) , but even so he is a very happy chappy just 79 years young, to think 10 years ago there was very little to control his cll due to p17 deletion.
I do hope all cllers can enjoy such similar experiences. He is very fortunate in being a patient at Sir Robert Ogden and MacMillan day unit in North Yorkshire, another one has just opened in Northallerton and there is another in Leeds.
best wishes hw