Failed Cll 13 trial test.

[Abc123qaz]

I failed to get on the clinical trial because of impaired kidney function. Creat. 83. Now I’m offered standard treatment of BR as I’m 70 yrs. my bloods are stable at WBC 80; RBC 3.93; HB 11.3 ( was 9.5 but taking iron supplement) HT 34; Lymph’s 69.5; Plates 163; LDH 217.

Don’t know my deletions and mutations but have had FISH and BMB tests. Cytogenetics showed no evidence of 13q, 14r or 11q, 22q, 23 del. BMB infiltration 90%. Don’t know if that’s good or bad. Have had 5 antibiotics this year for infections. Lumps around neck much bigger. My question is can anyone advise me if I would feel an improvement after BR treatment. Some days I feel good, yet this year I feel a lot weaker, last year I had quite a lot more energy.

I was diagnosed in 2012 , w & w ever since. What do I do, can anyone speaking from experience of BR treatment help me decide or give me some advise. I sing in two choirs and am mixing with a lot of bugs I also like to swim in the pool a few days a week.

Eileen

[Jacksc06]

Hello Eileen. I had four cycles of Bendamustine & Rituximab between October 2016 & January 2017. I have catalogued my journey from diagnosis to present day. Nothing hidden, good days & bad. Please bear in mind that we are all different & react differently to treatment. Please feel free to browse & I hope it is of help to you. Regards.

[Abc123qaz in reply to Jacksc06]

Thank you Jack, that will be most helpful.

[cllady01 Former Volunteer]

Eileen, if you will click on the magnifying glass (in upper rt corner of computer screen (above Related Posts) and input BR, you will get posts related to others experiences with BR.

I can't offer more, have had no treatment.

[Abc123qaz in reply to cllady01]

Thank you for your help cllady