So nice to have found this community. I'm two years in to diagnosis and have had BR treatment. Right now, I'm doing well except for persistent Neutropenia (coming up to one year post treatment next month). My doc is a CLL expert in the US but works in a smaller community (Jeff Sharman). Have had Neupogen 3X, 2X and now 1X a week since March 1. ANC running usually between 0.5 and 0.8, occasionally moving up to 1.1 or so and rarely now dropping to 0.4ish. Doc seems concerned that BR may have damaged my bone marrow. Still don't know. BMB may be in my future. (Didn't have one when starting BR because my disease bridged SLL/CLL with lower peripheral ALC....4500-6000. Treatment was started because of the grown of a cluster of nodes that were pressing on windpipe....no individual node was large, but the cluster was. Any ideas of what I should plan to ask my doc when we have a summit meeting on the persistent Neutropenia next Thursday would be helpful. Otherwise, thank you for just being here and available for support and information.
--Anne (Trisomy 12, some good/some bad indicators; Eugene, Oregon)