REMISSION !!!!!!!

[lartington]

my husband has been on Ibrutinib for three years and one week, during that time he has been off and on the driug several times due to surgery/clinical procedures. He has found the side effects difficult at times,however, yesterday in a clinic visit after normal bloods being taken, he is declared as being in remission. The haematologist also pointed out that he should get all his vaccinations updated as he is still immuno suppressant . We are so grateful to Harrogate Hospital for putting his name forward as a suitable patient and indeed to the drug company for funding this amazing treatment. hazel walker

[PaulaS Volunteer]

Wonderful news Hazel. I remember how your husband went through some extremely difficult complications with his illness earlier, so it's specially good to hear he's doing well now.

Thanks so much for sharing,

Wishing you both all the best for the future.

Paula

[AussieNeil Partner Administrator in reply to PaulaS]

My thoughts exactly. It's posts like yours Hazel, that give us all that all important hope that we can get through even in very tough times with our CLL.

Neil

[Hidden in reply to PaulaS]

Hazel- that is incredible- congratulations!!! What does that mean as far as treatment? Does your husband still take the imbruvica or at a reduced dose or stop altogether?

[Hidden]

Congratulations! This is fantastic news and give those of us that are struggling with IB sidefx to carry on. thanks for the encouraging news. -bill

[UK-Sparky]

A great news, celebrate instyle!

Milton Keynes Marc

[PlanetaryKim]

Wonderful news! Congrats to you and your husband, Hazel.

kim

[terryI_uk]

That's great news hazel, worth putting up with the side effects to get a good result, best wishes, Terry

[Elliot43]

What Great news...rewarded for carrying on bravely dealing with those damn side effects.

Sheila

[richutchens]

Fantastic news. Gives all of us on ibrutinib more hope.

[Corkyrissa]

So happy to hear about his remission . Gives all of us hope. I'm on Imbruvica have been since August 2017 doing fine just a few complications left but all in all getting better.