My haematologist has given me no information about my CLL since he told me I have it three years ago.
Other than the WBC (white blood cell count), [which has been jumping up in large increments since February 2017], I do not know which other markers I should be looking for which are indicative of the progress of my CLL.
Could someone tell me which markers I should be looking out for, and not use acronyms, since it is not always easy to decipher them. Your help would be appreciated, since finding out myself seems to be the only way I'll find out anything about my own illness!
I'm on Fexofenadine and Hydroxyzine for intense generalised itching, and for the moment, they seem to be dampening it. Has anyone else experienced generalised itching and could you suggest ways of combatting it? I use barrier emollient creams also, alongside Nasobec steroid spray for the rhinitis and Cromoglicate drops for the gritty eyes. They provide adequate relief, thankfully
My active surveillance appointments have been increased to 3 monthly, instead of the former 12 monthly and it's looking more and more like chemo may be started sometime in the medium term, if the WBC keeps on heading north.
Otherwise, apart from the itching, I feel reasonably well!