So I'm new to the community. I was diagnosed in January 2016 after suspecting something was wrong for about 6 months, and having some B symptoms for almost a year prior to that. I have two other chronic illnesses that both result in a lot of pain and fatigue, so I'm told it's possible I have had CLL as far back as a hospital visit I had in 2012 when I almost died of severe bacterial pneumonia.
Presently, at the start of my second cycle of chemo and targeted therapy.
The reason I'm posting now is primarily to thank all of you who post and respond to each other with such empathy and kindness. This has been one of my favorite resources to search when I have a question.
Hopefully I can start to contribute to that. Been blogging on my own site about it for a while, and found a great app that keeps me connected when on my phone. Still a bit lonely for the company of other people who know what I'm going through.
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asktinu
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Come out from your lurking place to where you belong, amongst the community you have come to know and already feel part of. Absolutely nothing wrong with enjoying the site without posting but it's lovely to hear from you especially at the critical time when you're having treatment. I hope it's started well for you and continues that way. I'm sorry it's become necessary so soon after your diagnosis but it sounds like you've had a rough few years anyway and possible undiagnosed during that time. Having just endured bacterial pneumonia I feel your pain!
Where is your own site Asktinu, it sounds very interesting. Just be aware you haven't restricted your post to the community should you wish to divulge any sensitive information.
I hope your other conditions are not playing up during treatment and that you're remaining positive and buoyant. Love your tranquil picture.
Hi asktinu. Welcome aboard. I understand your loneliness. We can have so many lovely, caring people around us yet still feel very alone with this.
People here understand your feelings and there is always someone here to lend a friendly ear. It may take a little time (different countries, time zones etc....) but I've found that this has helped me so much when I've felt a little lost and I'm sure it will do the same for you.
People have been so great already. I really appreciate your comment- it's comforting just to know someone is out there and at least cares enough to say "hi back"!
I just wanted to add my welcome to the other welcomes you've already received. I've found it a wonderful group to join.. It really helps to be able to talk with people who know what we're going through.
You say you're at the start of your second cycle of chemo. Maybe you'd like to tell us which sort of chemo you're having (which drugs are involved), and you'll probably find others who have had (or are still having) that same treatment.
Yes I'd like to do that in a separate post. Still figuring out how to.phrase it. I'm on the BR regimen, bendamustine & rituxan if my spelling is correct.
Welcome to this amazing sight with such lovely people that you will find knowledge ,warmth ,and friendship that you will feel you know each and everyone personally .
I hope your treatment is going well and you will soon be able to look back and say (well now that is over I am now getting on with my life )
Hi Tinu,Just wanted to send you warm wishes and a hug.I have no advice on treatment but am happy you found this site and came out of lurking and I hope we hear more from you and that your treatment goes well,Warm welcome,Pumpkin
Welcome to our community. You have found the right place for knowledgeable people and I hope you continue to share and ask questions. Someone always has input. I am on w&w and have been for four years. As with you I suspected something was wrong in 2012 when after a move I had no energy and lost weight. I found this site kind of by accident and so happy I did. I lurked for a while myself before jumping in with questions and sharing. I hope that all goes well with your current treatment. Carole
I don't post very often but do read the posts daily. I'm glad you're here!
This site has been an incredible information source for me and my husband (he was diagnosed 3 months ago and is symptom and treatment free.) Even more than the information available is the positive attitudes of all who contribute here. I realized I needed some support to get out of the dark place the dreaded diagnosis can take us, and here it was.
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you certainly tell it how it is.
Diagnosed at 33 with cll and have discovered I've had it from early 20's
For those of you on Ibrutinib- what foods have you been avoiding?
Still new to the forum but I have started with Ibrutinibe.
Hello, I'm new and happy to have come across Health Unlocked.
