Brain Hematomas: Has anyone experienced... - CLL Support

CLL Support

23,339 members40,047 posts

Brain Hematomas

Paolob profile image
4 Replies

Has anyone experienced recurring brain hematomas with their CLL and if so what are you trying to do to prevent them?

Written by
Paolob profile image
Paolob
To view profiles and participate in discussions please or .
4 Replies
Jm954 profile image
Jm954Administrator

Oh my goodness Paolob, that sounds a bit scary.

I'm unsure how you can prevent them as I don't know how they occur, do you have any more information.

Hopefully you're discussing this with your medical team.

Paolob profile image
Paolob in reply toJm954

Writing for my husband who is in ICU after three craniotomies in the last 10 days so yes we are getting great care but it has been confirmed that the CLL is the driving force. Thanks for your thoughts.

Jm954 profile image
Jm954Administrator in reply toPaolob

Oh gosh, I'm so sorry to hear that.

Glad to hear he's getting great care but I'm sure you're still very concerned for him. Regarding the haematomas, his medical team will be able to offer the best advice specific to your husband's situation.

Was this the first that you knew of his CLL or has he had the diagnosis for some time?

Everyone reading this will be hoping your husband makes a good and speedy recovery. Please let us know how he is, as and when you're able to. He'll be in our thoughts and prayers.

Take care

Jackie x

LynnB1947 profile image
LynnB1947

I'm on ibrutinib & coumadin which are a bad combination for subdural hematomas but so far, I've done fine for 3 years. My INR target range is 1.5 to 2.5 and my INR has been very stable. If your husband is on ibrutinib, the drs need to review the side-effects.

Praying for your husbands recovery.

Not what you're looking for?

You may also like...

Ibrutinib and Hematomas

Has anyone had issues with developing hematomas while on Ibrutinib? I started the med on August...
Lisa-1959 profile image

Brain MRI

Has anybody had a brain MRI due to CLL?
BIDELVIE profile image

CLL - rare brain complications

Hello. First post, my dad essentially showed up at my house on 10th July, super distressed as he...
basshy profile image

Dizzy / brain freeze

Been on ibrutinib for 11 months and already in remission but from time to time i get like a brain...
cartwheels profile image

CLL&Dizziness,Cloudy Brain....anyone?

I was diagnosed with CLL 3 years ago. I have had skin issues, severe allergies all of a sudden to...
deanna2289 profile image

Moderation team

See all
CLLerinOz profile image
CLLerinOzAdministrator
AussieNeil profile image
AussieNeilAdministrator
Newdawn profile image
NewdawnAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.