Dizzy / brain freeze: Been on ibrutinib for 1... - CLL Support

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Dizzy / brain freeze

cartwheels profile image
7 Replies

Been on ibrutinib for 11 months and already in remission but from time to time i get like a brain freeze sort of dizzy spells few seconds only . Now i know it could be 101 different things but wondered if anyone else ether on ibrutinib or with cll gets these

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cartwheels
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7 Replies
Jph02006 profile image
Jph02006

Hi Cartwheels

I know what you mean. Ibrutinib can trigger heart arrythmia (eg afib) which can make you feel dizzy or lightheaded. You may want to check with a cardiologist.

BTW, you might get more detailed responses if you lock or limit your post to the community

PlanetaryKim profile image
PlanetaryKim

I recently developed a problem similar to this on Ibrutinib. Kept getting light-headed dizzy spells while I was sitting in chair doing nothing - on computer or watching TV. Had been on Ibrutinib 5+ months. Then I was taken off IBR 9 days ago for surgery... and light-headed problem has not recurred. I mentioned it to my CLL specialist when I last saw him.

kim

cartwheels profile image
cartwheels in reply to PlanetaryKim

That is the same as me I seem to get it when I'm on the computer or smartphone etc

W00dfin profile image
W00dfin

I think I have had that happen maybe twice since starting Ibrutinib but just ignored it. Will pay more attention. I have been on Ibrutinib for 9 months.

cllady01 profile image
cllady01Former Volunteer

This site, Oncolink, suggests you call your Dr. if you have dizziness and it is under the Heart Problems side heading.

oncolink.org/cancer-treatme...

richutchens profile image
richutchens

Congratulations. Remission after 11 months is awesome. I’m 18 months and have a occasional dizziness but nothing severel.

Hoffy profile image
Hoffy

I have some brain freeze a bit but I think I have had it for while before Imbruvica.

Be well,

Hoffy

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