Vaccines, Ibrutinib toxicity,Dr. Rai on a cure... - CLL Support

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Vaccines, Ibrutinib toxicity,Dr. Rai on a cure, Dr Ghia on TP563 testing and ERIC

bkoffman profile image
bkoffmanCLL CURE Hero
12 Replies

I warned that our website's pages would be busy through the end of the year.

I tried to synthesize the vaccine guidelines referenced here and elsewhere in this review: cllsociety.org/2019/10/vacc...

Dr. Awan wrote for us on the recent news about Ibrutinib's effect on cardiovascular health: cllsociety.org/2019/10/card...

The one and only Dr. Kanti Rai talks both the elusive cure in CLL: cllsociety.org/2019/10/e-r-...

And Dr. Paolo Ghia discusses harmonization lab tests (cllsociety.org/2019/10/eric... and ERIC 1st meeting ( cllsociety.org/2019/10/eric...

Too busy.

Stay strong, we are all in this together

Brian (CLLSociety.org)

12 Replies
mickimauser11 profile image
mickimauser11

loved the Interview With Dr Rai reaching u MRD is possible With several treatments the Problem is the duration

Sushibruno profile image
Sushibruno

How are you feeling bkoffman?

Sushibruno profile image
Sushibruno

That is some really scary stuff on the side effects of ibrutinib😡

bkoffman profile image
bkoffmanCLL CURE Hero in reply to Sushibruno

The BP numbers are high's but it's manageable. Others are more serious but less common.

Sushibruno profile image
Sushibruno in reply to bkoffman

Thank you i appreciate your response.

AussieNeil profile image
AussieNeilAdministrator in reply to Sushibruno

We have a pinned post on this important topic, stressing the importance of close cardiovascular monitoring and management as appropriate here: healthunlocked.com/cllsuppo...

I've added in a link to Dr Awan's CLL Society article.

Neil

Sushibruno profile image
Sushibruno in reply to AussieNeil

Thank you Neil

bkoffman profile image
bkoffmanCLL CURE Hero in reply to AussieNeil

Important topic.

Tommays56 profile image
Tommays56

I always enjoyed my visits with Dr Rai

While it was disappointing to here him say treatment at this time would make my situation worse I know it was absolutely the best advise backed with a lifetime of wisdom

bkoffman profile image
bkoffmanCLL CURE Hero in reply to Tommays56

Dr. Rai has a well earned reputation for taking good care of his patients.

Wroxham profile image
Wroxham

Thank you Brian.

I particularly enjoyed listening to Dr Rai

talk. So understanding I think.

Sue

vog292 profile image
vog292

Highly important orientation!

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