Hello, I was dx in Jan this year and am still on W & W. My ALC in July was at 9.5, WBC.. 16 down from 19 at dx.... ANC..5.7 HGB...15...PLT .... 201 RBC .... 4.76 all seem to be stable for now. I want to stay healthy especially with my 3 kids still in school, lots of germs coming into my home. What immunizations should I be getting ? I know no live viruses! Also I do have to travel on a plane usually 6-7 times per year for work, I hate all the airplane germs I cant wear a mask, don't want the attn. should I be concerned ? Lastly, since I am 11qdel and unmutated my specialist DR Sharman in Oregon says when my time for treatment comes, he'd put me on Ibrutinib...from what I've read that sounds like the best choice, does that sound right ? I'm not quite sure if I'm a complex karyotype but I think so since I have 3-4 different chromosome abnormalities, not sure if that makes any difference. Any thoughts on how long I have before treatment is needed...? I have slightly swollen lymph's everywhere but nothing too significant....my doc thinks maybe 1-2 years, but who really knows. My blood work seems stable.
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