Thanks so much for everyone on this site! I was just diagnosed with CLL on Dec 18th and I started chemo (BR) on Dec. 21st. I was completely healthy then the next thing you know my glands are so swollen that I lost 20 pounds in 10 days and almost lost my airway. I just turned 46 last month. How can one be 100% healthy, thin, active, never smoked, done drugs, or drank and then have things go into the "toilet" so quick? It was crazy.
Anyways, things moved really quick for me. I didnt have time to consider clinical trials and what-not (although I asked and the doctor said there wasnt time). He didnt want to wait for CAT scans or the FISH test. I understood and agreed with his concerns. I have had my periods of "freak out" after the diagnosis then after finding out last week that I'm 11q and 13q deleted as well as CD38+.
This site helps me calm down. Im trying not to be afraid. I have 12 kids ranging in age from 25 to 10 months. I need to be here a long time for them.
After my first round of BR my ALC went from 91000 to almost 1000. Everything else looked great too. The second round also went super well. The doctors at Cleveland Clinic says Im doing great but Im still going to OSU to see what the team there says on Feb 10th.
Any advise on what I should be asking now that my health is not in "crisis" and only my emotions are weak? I want to make sure I use this appointment wisely.