After having blood tests, ultra sounds & CT Scan I feel I still am none the wiser since my last visit to my haematologist.
These tests were all ordered through my GP & after visiting him to get my results he organised another appointment with my haematologist as the results showed my lymph nodes were enlarged throughout the body, my liver was enlarged & the spleen only a little more since my last tests were done. The bloods showed my haemaglomen & iron levels were very low, with the GP saying that the haematologist possibly would give me an iron infusion.
Well today I went with all these questions about my CLL. Questions about what stage is my CLL at, was he going to do an iron infusion, gene mutation & the blood readings to get answers like “ you don’t need to worry about that” “ no you don’t need an iron infusion “ “ no you don’t need to take iron supplements “ I felt like I was being fobbed off.
I am just getting over a chest infection & had had a X-ray for that with GP telling me there was some other under lying issue going on in the chest so he had that further tested having the results sent straight to the haematologist. When attending today I asked twice about the chest I never got any specific answer. All that I was told by him was “All the enlargements was due to my body fighting the infection” He ordered more blood tests & to see him in 3 months time.
My husband & daughter came with me today & my daughter said the haematologist had no empathy & she felt he was very arrogant.
I feel I should see if I should see another haematologist to see what they have to say.
What do you fellow CLL followers think.
CopJen from Aussie