CLL Patient makes history

[shuggie2506]

Hi My name is Hugh Forgie. I am a member and supporter of CLLSA. I have had CLL for over 12 years. Over the past 6 years I have had 2 lots of chemotherapy. I have now developed a TP53 deletion which means I can't t have any more chemo. I am now on Ibrutinib.

in June of next year my wife and I plan to cycle 2000 miles between us, in 10 days, to raise awareness and funds specifically for CLL reasearch at the Paul O'Gorman Centre in Glasgow. Please refer to our Just Giving link justgiving.com/Margaret-For... or go into Google and type in Just Giving then search for Hugh Forgie in the bar at the top. Any help would be much appreciated.

My wife and I will be attending the meeting at Brentford on 16th December and would love to meet you there.

Any help given will benefit all of us.

Hugh and Margaret Forgie

[HAIRBEAR_UK Founder Admin]

Hi Hugh

It was great to meet you both at the Brentford meeting on Tuesday. Thank you both for travelling down from Glasgow and for your inspirational talk sharing your CLL journey with us.

I believe you will make history and what a way, your story brings so much hope to us all living with CLL and your effort will help the Beatson CLL Paul O'Gorman centre help so many more with CLL

Keep on rolling

Nick

[HAIRBEAR_UK Founder Admin]

Dear friends it is with regret I share the news I received today of Hugh (Shuggie's) passing late last year. Not sure if this has been shared here previously,

Hugh was monumental in his fundraising efforts towards supporting further research into new treatments for CLL and leukaemia patients - This original post from Hugh and his wife highlights their level of commitment to the task. It is clear that we still today require more treatment options in the tool box and many are coming through the research pipeline and into clinical trials and soon we hope the NHS. It is with this in mind I am sharing news from his CLL doctor that fundraising is being undertaken by a number of current, past staff and students at The Paul O'Gorman leukaemia research centre, in the memory of Hugh Forgie,

"You may remember Hugh spoke at CLLSA Glasgow and Brentford meetings 7 years ago, talking about the importance of keeping fit for what life throws at you. Hugh and his wife Margaret had planned to commence a new fundraising challenge and cycle 2000 miles through Italy to raise funds for the lab, however I am very sorry to say he sadly died of his CLL late last year before he could complete this. We are taking on his planned miles in his memory in different forms, I am running 100 miles over 30 days, which is quite a challenge for me as a novice lockdown runner."

Here is a link to the team Just Giving page, justgiving.com/team/POG-LRC

Where donations can be made to the whole team or individual's efforts.

[PaulaS Volunteer in reply to HAIRBEAR_UK]

I'm so sorry to hear that Hugh Forgie is no longer with us.

I remember his post here from 2014, and was inspired by his enthusiasm and commitment. (In those days this group was much smaller and it was easier to know everyone).

Please pass on my sincere condolences to his family.

with sadness,

Paula