New CLL Patient

[CLL12345]

Hello All, my name is Sam and I was diagnosed with the beginning stages of CLL just over a year ago. I am 66 years old and I am in the commercial finance and leasing business. I looking forward to sharing and learning more about CLL through this group.

[nkferg]

Welcome,

This is a great site. Hard to find anything that someone on here has not dealt with.

[newyork8]

Welcome to this informative site.

[UK-Sparky]

Welcome to the club no one wants to be in but has great membership and camaraderie! Keep healthy and learn lots from the wisdom and resources of the forum Sam

UK Marc

[vinnet]

Welcome

How regularly are u being monitored by your onco? When was it done last...

vinnet

[CLL12345 in reply to vinnet]

Good Morning, I see my specialist every 6 months, and due to see him again in July.

Thank you....

[vinnet in reply to CLL12345]

Thanks. How is the freq decided. My onco calls me every three months? What could be the reason?

[Bubnojay]

Hi and Welcome Sam

No one wanted to join this community but the majority of us are so glad we did. Good community spirit and importantly lots of information.

There is so much that I took it in in smaller bites Initially or my brain had a melt down.😟

I hope you find all you wish to know reading pinned posts and daily posts and replies. We are international now so just wondering where you live?

I'm in Wales

Best wishes

Bubnjay1

[Jacksc06]

Hi Sam & welcome. You will find great support here. The good people in this family have a wealth of experience so if in doubt about anything ask away.

[Peggy4]

Hi Sam. Just adding my welcome. Not the place you wanted to be but well worth the visit. It's such a supportive community and made such a difference to me in the early days whilst I was trying to come to terms with it and understand it all. I made a file of all the things I needed to understand. As time has gone on I either add to it or take something away. I read all about the new treatments (don't always understand it but you'll be surprised how soon you pick things up)

This is also a great place to have a rant if you're feeling a bit angry or just a bit of empathy on a bad day from others who know how you feel.

Oh and the good stuff of course, we all love the good stuff. Share the good moments, it's nice to have fun.

Peggy 😀

[CLL12345 in reply to Peggy4]

Thank you, Peggy and I want to thank everyone that has been so kind to welcome me into this group., Wow...

Sam

[Foggymind]

Welcome to our forum Sam, so glad you found us. I am sure you will receive lots of support and comfort from the folk here. This forum has a wealth of information and a great deal of wisdom, some of which has been included in three documents created by members of this forum that I’m sure will prove useful to you. They contain lots of excellent advice about living and coping with CLL. These guides can be found by clicking on the links below.

Coping Strategies - Part 1 improving our CLL journey

healthunlocked.com/cllsuppo...

Coping Strategies - Part 2 Living with CLL

healthunlocked.com/cllsuppo...

Coping Strategies - Part 3 Keeping our spirits up

healthunlocked.com/cllsuppo...

Take care and best wishes for the future.

Kevin - Essex, UK

[CLL12345 in reply to Foggymind]

Kevin, thank you so much... I will look at these sites today.

Sam

[richutchens]

Welcome Sam. I too am in the commercial equipment finance business. This is a great site.

[CLL12345 in reply to richutchens]

Thanks for reaching out to me, are you in the commercial finance business in the USA?

[maggiesgrandmom]

Welcome!

[NooNoo14]

Welcome Sam.

If you need any advice - shout! Due to the nature of CLL you rarely find two people who are at the same stage, the same age, have the same complications so whatever you need there is always someone to answer your questions or point you in the direction of someone/ somewhere who can.

Netty

[CLL12345 in reply to NooNoo14]

Thanks, Netty..

I have had CLL for just over a year now and I am not sure if recent night sweats are from the CLL condition or not. I normally only get a cold or two yearly and I already have had three so far this year alone. They both could be just coincidences, so I will just wait for my next doctors visit in July and see if there were a serious changes in my labs.

Sam

[NooNoo14 in reply to CLL12345]

Hi Sam.

I too am 66 but was diagnosed 6+ years ago during a well woman check and have been Watching and Waiting since then. waiting for appointments can be stressful can't it? Make a list of your questions (I can guarantee you will forget to ask something if you don't) and take someone with you (someone with a good memory) so they can remind you of anything you don't take in.

Reference the colds you have suffered this year, I too very rarely catch colds but had two quite nasty ones just before and just after Christmas. My numbers haven't changed much so think it was just that there were a lot of nasty viruses around. Fingers crossed we will be ok for the rest of the year.

Take care

Netty

[CLL12345 in reply to NooNoo14]

Netty,

Thanks for your reply, yes, keeping our fingers crossed that we'll all make it through another year..

Best,

Sam

[ap64]

Welcome to our community. All the usual words of encouragement and introduction have been said by others. stick with us you won't be sorry. It is a great group.

[BeckyLUSA]

Welcome to the group. Hope you find lots of affirmation and information on this site!

BeckyL

[mister_Ian_NE]

Welcome aboard Sam

[RJR1]

As so often said " welcome to a club no one really wants to be in".... but know for sure the members of this club are friends and you'll learn from them daily... welcome aboard!

[OzzieNick]

Welcome Sam! Good luck with your journey. You will always have support on this site.

Nick