Brian shares with us: how he learned of and reacted to his wife's diagnosis, how that affected him, what he understood and how they discovered what this meant. how they both gained their knowledge to put things in context, how learning and information networks were key, how on-line resources countered some of the isolation while they supported each other.
Julia's Story: From CLL Diagnosis To A Doctorate Study Of How CLL People Use The Internet.
Julia shares with us: her experience of CLL diagnosis, first questions, the general doctor’s knowledge, how being selective when sourcing information is important, Julia discusses the importance of relationships and working together with her doctors, and following what's happening in the community. How this all lead to Julia’s interest into how people use on-line communities and information resources to support and inform each other, That not all have access, are able or confident using the internet and there is a large older group of CLL patients we don't know much about.
More video of CLL patients and Carers sharing their own story