I have been on watch and wait for eight. For a... - CLL Support

CLL Support

23,335 members40,042 posts

I have been on watch and wait for eight. For a while my PSA levels have been monitored at the same time as my regular blood tests. The level

pilch profile image
12 Replies

has just doubled to ten in the last three months and I have been referred to a Prostate Consultant. It seems possible he will suggest a prostate biopsy which I believe carries certain risks of infection.

Does anyone have any experience or advice on this. I will of course discus any action with my CLL consultant.

Written by
pilch profile image
pilch
To view profiles and participate in discussions please or .
Read more about...
12 Replies

pilch you are one of the lucky ones to have been diagnosed early. I did a post recommending all men especially cllers had this test done. Very little response so it seems people don't think it will happen to them, perhaps your post will do more good than mine did.

Whilst unpleasant if you have the biopsy you will most probably be given very strong antibiotics to take prior to and after the biopsy. If you are wondering why I say you are lucky, my partner's PSA count was over 300. His doctor was treating him for sciatica, and refused Xrays which would have made the diagnosis before his cancer infiltrated hips, sternum, ribs, etc.

I wish you well and am confident that you will be fine.

Best wishes

Bub

Rileyesq profile image
Rileyesq

I had my PSA checked the other month (even though only 45) following reading a post on here recently. Luckily my results came back in the normal range but wanted to let you know that people are probably taking notice but maybe not always posting back.

Best

Thanks for that comment Rileyesq. If just one person reads this post by Pilch and is diagnosed early rather than too late to prevent it rampaging through the body, then it is well worth it.

I note an article in the Daily Mail today did not advise having PSA tested, would be interested to find out how else they can diagnose prostate cancer as it frequently presents no symptoms.

Bub

Cllcanada profile image
CllcanadaTop Poster CURE Hero

CLL ers should have PSA testing on a regular basis, we are at higher risk for secondary cancers...

A recent study found prostate cancer in over 10% of male CLL patients...

Get tested, get an annual DRE.

meetinglibrary.asco.org/con...

New test, on the horizon

dailymail.co.uk/health/arti...

pilch profile image
pilch

Thank you all for your replies. I'm seeing the prostate consultant on Monday and will report anything of interest.

Pilch

Pilch

How did you get on, I hope everything was ok.

Bubnjay

Pilch

How did you get on, I hope everything was ok.

Bubnjay

pilch profile image
pilch in reply to

Good news. Although the biopsy showed what the consultant called a slightly iffy area it was basically clear of cancer and he doesn't want to see me for a year. We are all very relieved.

Best wishes

Pilch.

in reply topilch

Absolutely thrilled for you Pilch thank you so much for taking the time to share the good news, and you will be monitored, so that is comforting. The biopsy is not nice I know but it is a difinitive test so you can rest easy, on that one at least.

Best wishes

Bubnjay

pilch profile image
pilch in reply to

Thanks so much for your encouragement. Basically the consultant said 10 should now be regarded as my PSA base and I should go back if it went higher.

As a small bonus I have a chronic condition bronchiectasis which for some years has caused severe coughing. Since I had the antibiotics after the biopsy Ive hardly coughed at all. This did happen once before when I had strong antibiotics after a dog bite. It's great as long as it lasts!

Best wishes. Pilch

in reply topilch

Hi Pilch

Those antibiotics having had a positive effect on the coughing is a welcome side effect from the unpleasant biopsy. I am so pleased some good, however transient has come from the antibiotics, as well as the comfort of knowing you do not have prostate cancer.

If other men knew what my partner is going through with the side effects of taking hormone suppressing drugs, and having radio therapy, I think they would be less reluctant to go for the simple blood test.

Hope you get a good rest from the coughing.

Well done you for biting the bullet and having the test.

Bub

pilch profile image
pilch

Thank you so much for your enquiry. Had a prostate biopsy last week. Result due a week on Monday. I was told nothing too unusual could be seen from the ultrasound which is hopeful.

I will pass on the news when I get it.

Best wishes

Pilch

Not what you're looking for?

You may also like...

Hi everyone I am wondering when I should have a pneumonia jab? Would it be the same time as flu vaccine? I am on watch and wait and have bee

Hi everyone I am wondering when I should have a pneumonia jab? Would it be the same time as flu...
robertsw profile image

Hi All I have been on Watch and Wait since being diagnosed in 2006. For the past 18 months or so my counts have been fairly stable.

My question is how often should I have my blood tests? I have to say my surgery is very flexible...
pilch profile image

First consultation after one month on Acalabrutinib which I started at the same time my husband became seriously ill.

I finally took the plunge and agreed to start acalabrutinib on October 7th. Comments from many of...
JEEA profile image

As a 66 year old on three years w & w - my lymph nodes and general health make me think my time for treatment may be soon.

Those who have experienced treatment in the UK - my question is what tests do we expect to be...

CT scan Boney lesions, I have just had a CT scan and boney lesions have been detected on my pelvis and lower spine, is this CLL related.

diagnosed 9 years ago, my platelets have started to drop from 240 to 144 in the last 6 months or...
MrsB1963 profile image

Moderation team

See all
AussieNeil profile image
AussieNeilAdministrator
Newdawn profile image
NewdawnAdministrator
CLLerinOz profile image
CLLerinOzAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.