Hello all! After my first bout of treatment ( ... - CLL Support

CLL Support

23,324 members40,026 posts

Hello all! After my first bout of treatment ( Bendamustine + Retuximab ) one of the pills I have to take is Allopurinol 300mg.

maureenmckeown profile image
12 Replies

It is an enzyme inhibitor which is for controlling uric acid build up. I have been taking one a day for 8 days. 2 days ago my left bicep began to ache and has since become swollen, hard and red. It is also hot to the touch. Should I be worried? Has anyone else experienced this reaction?

Best wishes

Maureen

Written by
maureenmckeown profile image
maureenmckeown
To view profiles and participate in discussions please or .
Read more about...
12 Replies
Cllcanada profile image
CllcanadaTop Poster CURE Hero

Maureen you should contact your doctor as soon as possible to advise him of your problem.

Might be anything... but you need it checked out. ASAP.

Hope you are drinking lots of water.

~chris

PaulaS profile image
PaulaSVolunteer

I agree with Chris - check it out ASAP - tonight if possible.

PaulaS profile image
PaulaSVolunteer

Maureen, maybe you could phone NHS direct and talk to someone there.

Paula

PaulaS profile image
PaulaSVolunteer

Sorry Maureen, thinking this over, I really think you should phone NHS immediately (or even consider going to A&E).

MartyR profile image
MartyR

Maureen, I am receiving B + R at the moment (+ other drugs.) My oncology dept has given me a telephone No should I have ANY reaction or my temperature rises above 38C.

Don't wait any longer get in touch and seek medical help!

Marty

maureenmckeown profile image
maureenmckeown in reply toMartyR

Thanks Marty. My oncology department did give me helpline number. Unfortunately they don't answer or ring back. I will be taking this up with them tomorrow. I have organized an appointment with my GP via NHS Direct for tomorrow.

Many thanks

Maureen

MartyR profile image
MartyR

Maureen, that's good news about the appointment - make sure YOU are happy with the outcome OR insist on seeing your Consultant. (And get that emergency number sorted. -I have used mine twice !)

Nice quiet day for me today - four / five hours of B + R infusion @ day care unit - then guess what - the same on Friday - but it's doing me so much good!

Keep us uptodate ! Marty

Berrytog profile image
Berrytog

Good morning Maureen

I thnk you have the best advice and Chris is probably in the right ballpark with hydration, I have been taking Alloplurinol for twenty years for gout and now for my treatment and never had such a problem.

R

bkoffman profile image
bkoffmanCLL CURE Hero

Remember I can not give medical advice and you must run all my suggestions by your treating doctors.Allopurinol can be associated with life threatening rashes. Although very rare, I have seen a patient die from this reaction. If here is any rash at all, I would stop it immediately and contact your doctor urgently.

maureenmckeown profile image
maureenmckeown in reply tobkoffman

Thank you bk. My GP thinks it is a harmless fatty growth with a vein passing over it that may be affected by phlebitis. This could account for the reddening and localized heat. He said infusions can cause this.

Regards

Maureen

PaulaS profile image
PaulaSVolunteer

Hi Maureen, It was great to hear you've been to your GP this morning. But I hope you get it sorted out with that Oncology helpline, possibly for a second opinion, or just to check why they didn't answer or get back to you yesterday.

Thinking of you,

Paula

maureenmckeown profile image
maureenmckeown in reply toPaulaS

Hi Paula

In A&E right now getting a second opinion! :-) Thanks for the advice from you and everyone see. Much appreciated.

Maureen

Not what you're looking for?

You may also like...

Hi all, have any of my CLL friends had their second AstraVeneca vaccine 7 weeks after the first one?

I have heard on the news that we Cll people should have the vaccine close together to get more...
Pekingese profile image

What is the maximum dose of ATAVAN I could take before my Bone marrow biopsy ?

Last BMB I took only one It did nothing for my nervousness I shook like a dog going to the vet...
Catnap7 profile image

Here's my experience of Day 1 of my 4th FCR Treatment. Think W&W is challenging? Let me tell you the time I spent Waiting.....

Thursday - June 12, 2014. FCR No.4 -Treatment Day 1. NHS - Belfast City Hospital 10:20 Arrive on...
Bribin profile image

Do I trust that my onc will choose the best treatment for me, ask for a list of alternatives to research, or resist treatment altogether?

My platelet counts have been dropping. Recently 118. My dr says 100 is the number that indicates...
Ragsgolf profile image

I have had both doses of the Pfizer vaccine, while they applauded me after I got my 2nd dose, 90 days later I found that I have no immunity!

I took Ibrutinib prior to January 20 when it gave me AFib and a few other problems, then stated...
KevinCLLITP profile image