My platelet counts have been dropping. Recently 118. My dr says 100 is the number that indicates treatment. He anticipates late summer or early fall. The regimen he indicated would be weekly infusions for six months. He then added that I would then be "good" for years. I believe he indicated that my white blood cells are crowding out the red blood cells. My spleen is slightly enlarged. I do bruise very easily. He didn't mention specific protocols by name. It has been 8 years since diagnosis, so I guess I've done well so far with this whole W&W thing, but this new phase is pretty scary. I hate the thought of putting poisons in my body and what might result from that. I'm now 70 and in very good health otherwise. Rarely sick from colds or flu. My heart was pronounced strong as result of stress echo cardio gram on Monday. Now waiting for results from ultrasound of carotids and a bruit in my abdomen. My husband is in mild to moderate stages of early onset Alzheimer's so staying healthy to care for him is very important. I recently retired from teaching after 48 years; I had hoped to make the landmark number 50 but I was becoming fearful of exposure to germs in my elementary classroom. The fatigue made it difficult to do much more than teach and my husband really needed me at home. I worry that treatment will result in a cascade of side effects and eventual loss of whatever immunity I still posess. And then the scare of secondary cancers to deal with too. Sooooo...do I just trust that my doctor is really smart and knows just which treatment I need? He is a hematologist and treats lots of CLL patients. I've tried to learn here and other websites, but I understand so little of what I read. Some friends say let the doctor do his job, but I know he calls it a "practice" after all! My friends mean well, but I trust the opinions of you who are so knowledgeable and so graciously share and encourage others. I look forward to reading your thoughts. ( sorry I originally posted this as a comment when I was reading another's question. I apologize for the redundancy. )
Last edited by HAIRBEAR
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