Well, I have had a consultation today with my permanent Haematologist after my immunophenotyping test last month.
Pleased to say he is very chilled about where I am now, he said my bloods are very good and no need to consider any treatment yet and hopefully not for a long time. He has basically told me that if my next set of results come back good when he next sees me on 12th July, then we will reduce the number of consultations to 6 or even 12 months. He did however tell me I can ask to come and see him any time I want, just ring and make an appointment so that is very comforting.
He said my CD38 result was good and that I am in the better group in that it looks like it won't become aggressive quickly, he did however caveat that by saying these can change and when things start to change in my bloods he would repeat these tests.
Regarding my blood tests, he has said he is willing to copy me in on all the letters he writes to my GP and is more than happy for me to have copies of my blood test results so I can monitor them myself.
All in all a good result and probably the best outcome, needless to say both me and my wife are happy with that. Oh and he's dishy so she likes him!!!