Update: I/V CAPTIVATE Fixed Cohort Trial - 4 ... - CLL Support

CLL Support

23,335 members40,042 posts

Update: I/V CAPTIVATE Fixed Cohort Trial - 4 years later

Mystic75 profile image
21 Replies

I am so happy to share with you the very good news that my husband's CT Scan showed normal lymph nodes, his spleen remained unchanged, and his blood labs are normal.

The doctor won't do a MRD test at this point because he said there isn't much point to it; however, my husband was UMRD at the end of the trial. The trial sponsors will do a MRD test but they will not release the results.

Of course I am immensely grateful but for me it underscores the need for further research because there has been so much progress in the last few years.

D.xo

Written by
Mystic75 profile image
Mystic75
To view profiles and participate in discussions please or .
21 Replies
mrsjsmith profile image
mrsjsmith

What great news D you must both be so very happy and relieved.

Sadly wide awake at 4am in London but the 🐈🐈 are fast asleep on the sofa, but I wanted to reply to your post.

Best wishes

Colette x

Mystic75 profile image
Mystic75 in reply tomrsjsmith

Awww, CoCo! You made me teary eyed....that was such a sweet thing to say, I wish I could hug you!

Hope you can fall back to sleep soon and the fur babies are keeping you warm. 😻😻

Big virtual hug,

D.xo

DebKat999 profile image
DebKat999

How fantastic that all is D, thank you for sharing this wonderful news.

I'm so happy for you both. 💕

Debbie x

Mystic75 profile image
Mystic75 in reply toDebKat999

Thank you, Cookie!❤️ Looks like we all are having a hard time sleeping! Hope your treatment is going well. I'll reach out to you to catch up.

D.xo

DebKat999 profile image
DebKat999 in reply toMystic75

Sounds good! I guess the three of us are the insomnia sisters tonight. 🥱xo

Mystic75 profile image
Mystic75 in reply toDebKat999

😍

Wroxham profile image
Wroxham

Good news for you both.Sue

Mystic75 profile image
Mystic75 in reply toWroxham

Thank you, Sue!

Poodle2 profile image
Poodle2

Just amazing 🎉

Mystic75 profile image
Mystic75 in reply toPoodle2

It is! Everytime we go for one of these appointments we hold our breath, and when we come out with good news, it's like getting a 'get out of jail card'!

SofiaDeo profile image
SofiaDeo

🎉🎉

jabee profile image
jabee

That is brilliant news D! I am so pleased for you both.

Jackie x

Mystic75 profile image
Mystic75 in reply tojabee

Thank you, Jackie! ❤️

Floxxy profile image
Floxxy

Fantastic news x

Mystic75 profile image
Mystic75 in reply toFloxxy

Thank yiu, Foxxy!

spi3 profile image
spi3

So happy for your hubby and you too! ❤️

Mystic75 profile image
Mystic75 in reply tospi3

Thanks you!❤️

Analeese profile image
Analeese

T😃hanks for the great news.

Mystic75 profile image
Mystic75 in reply toAnaleese

👍Txs!

Catnap7 profile image
Catnap7

Soooooo WONDERFUL!!!

Catnap7 🐈🐈

Mystic75 profile image
Mystic75 in reply toCatnap7

Thank you Catnip! 😻

Not what you're looking for?

You may also like...

Update- My Imbruvica plus Venetoclax Captivate trial.

Hello, I am very pleased to report I am still MRD undetectable in the blood and bone Marrow after...
Hoffy profile image

I am now in the next phase of the Captivate Imbruvica plus Venetoclax trial. I have been Ramdomized!!!

Hello, After taking both drugs for about the last year - as shown in the picture. I am now on the...
Hoffy profile image

Update 3.3 Years Captivate trial, 4.3 years with CLL and so far so good! Now I have to worry about CV-19 ...

Hello, I am very pleased to report I am still MRD Undetectable ( UMRD) in the blood after 2 years...
Hoffy profile image

Update - I am 6 month clear in Blood and nodes via MRI on Captivate Imbruvica plus Venetoclax trial.

Hello, I am pleased to report I am still MRD negative in the blood after over 6 months. My recent...
Hoffy profile image

Captivate Trial MRD status

I've been part of the CAPTIVATE trial since 2018. My treatment ended in May 2019....Ibrutinib for...
lamboman profile image

Moderation team

See all
AussieNeil profile image
AussieNeilAdministrator
Newdawn profile image
NewdawnAdministrator
CLLerinOz profile image
CLLerinOzAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.