My new CLL Treatment
My oncologist is recommending a drip of Rituxan and Bendamustine for my CLL treatment to replace Imbruvica since I had heart issues with this...
They have recommended treatment starts asap with Obinutzumab and chlorambucil....
This trial is going to reopen- Called CAPTIVATE. Ibrutinib plus venetoclax study sponsored by Pharmacyclics - Study Number PCYC-1142 .
Title: Phase 2 Study of the Combination of Ibrutinib Plus Venetoclax in Subjects With Treatment-naïve Chronic Lymphocytic Leukemia/Small Lym...
Hello After Venetoclax and Obinutuzumab I am mrd- both in PB and marrow. I would like to get vaccination against ticks ( TBE )....
ALC pattern increase
Just wondering if an average 3,500 annual ALC increase is ‘ normal ’ for a low risk CLL ( category 0 )....
Some ideas please
Hello again, I have transferred to the Marsden, I was told at my local hospital of my CLL I have received “ copying of letters ” but flummoxe...
Patient Power Video updates on Blood Testing and New Treatment updates
Patient Power email here: patientpower.info/index.cfm... - Includes video updates from ...
Results of flow
What does this mean regarding cll? PATHOLOGICAL DIAGNOSIS A....
Hi, At ASH, I had the chance to interview Dr. Thomas Kipps, an expert on cirmtuzumab that targets ROR1 ( Receptor Tyrosine Kinase Like Orphan...
Mbl cll like
After a flow cytometry test i was diagnosed with monoclonal b lympocytosis ( mbl cll like )....
CLL and Vitamin C
I was thinking of getting some Vitamin C IV and read some posts from a few years ago that said vitamin C might overstimulate lymphocyte produ...
CAR-T coming to OSU Medical Center
Hi All, Having just returned from my 12 week Clinical Trial monitoring I got the first tangible hints that CAR-T ( Chimeric Antigen Receptor ...
Dx 203 CLL in Feb 2013,male, living in India, watch and wait till last week....
I was diagnosed with Non-Hodgkin's Lymphoma cll in August of 2017....
So Very Blessed
Good Morning fellow CLL sufferers , I have recently received the results from my latest six month blood work and exam. My only complaint is s...
Discontinuation of ibrutinib
Hi everyone! It´s been a while since my last post....
Newly diagnosed with CLL or just found us? This post is for you!
This pinned post is specifically for new members, in particular those that have been recently diagnosed with Chronic Lymphocytic Leukaemia/Sm...
Concern about another cancer
On trial of Ibrutinib and venetoclax for 3 months. Very concerned because I got called to have a diagnostic mammogram and ultrasound after my...
Dr. Wang of Mayo on Richter's Transformation and my Irish Podcast on CAR-T
Hi, This week we published my interview with Dr. Wang from Mayo about Richter’s Transformation. This is increasingly a problem as we are livi...
CLL, Bladder Cancer and BCG coming up for me
I've been on Ibrutinib for about 1 year, diagnosed in 2009, first round of chemo in 2012 at Duke Med on a clinical trial stopped because of e...
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