saw consultant yesterday I have almost completed diagnosis few more tests to come .
it would seem that my CLL has mutated into a quite a rare lymphoma I don’t think I have it quite right but it’s called ana plastic lymphoma ( apparently a rare form that mutates from CLL )
I will have six courses of chemotherapy every 21 days it’s a version of chop but with two different additions ( I will post more info when I’m able )
My consultant is in touch with not only the teaching hospital in Wales but apparently specialist haemotology consultant all over the country .
as there is now a plan in place and my consultant definitely seems more on top of everything I feel more positive. I know that there is no magic bullet and what I face is going to be a hard journey but I’m decided that as an elderly aunt of mine who is 98 years old quotes all the time .. one day at a time . My next chemo is next Thursday so 🤞 my bloods hold up ( yesterday bloods looked good 👍)
Thankyou again to everyone for your support and messages have a good day wherever you are x Chris
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Hilo13
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I won’t say it’s good news, but it’s good that you at long last have a diagnosis and a treatment in place. Hopefully every 21 days sounds very manageable. Your aunt sounds marvellous 🤞
Really hope things go well. I was so ill that I was in a wheelchair in December but thanks to fantastic new treatment I have never felt better. In fact, off for a 3 week tour of Scotland next week. Never ever give up hope. X
Hilo13 - You sound much more at ease now that there is a plan and you know what is going on. Your confidence is half the battle. Hopefully the treatment will work well and you will tolerate it well.
Wishing you strength to get through the treatment. I agree with the one day at a time mantra. Hoping the treatment isn't too harsh. Take care of yourself
Wishing you all the very best with your treatment, Chris. You must be feeling so relieved to have the diagnosis and to feel confidence in your consultant.
Hi Chris not what you hoped to hear but having a plan seems to have settled your mind. You have a great mindset and I wish you well with your treatment. One day at a time is the way
hey hey ! Wow ! You truly are a rare unique being !!🤎🧡🤗how did they come up with this conclusion. I know you feel better somewhat ! But like you said, there is a plan ! So that's a start ! One day at a time! Yes ! Please keep us updated on things !🤗🧡🤎
Having answers and a plan always makes me feel better - even if the plan isn't an easy one. We are sending you support and strength to navigate yourself to the other side of this and wishes for the easiest path possible. Blessings and positivity surround you and yours. Onward!
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