a diagnosis at last

[Hilo13]

saw consultant yesterday I have almost completed diagnosis few more tests to come .

it would seem that my CLL has mutated into a quite a rare lymphoma I don’t think I have it quite right but it’s called ana plastic lymphoma ( apparently a rare form that mutates from CLL )

I will have six courses of chemotherapy every 21 days it’s a version of chop but with two different additions ( I will post more info when I’m able )

My consultant is in touch with not only the teaching hospital in Wales but apparently specialist haemotology consultant all over the country .

as there is now a plan in place and my consultant definitely seems more on top of everything I feel more positive. I know that there is no magic bullet and what I face is going to be a hard journey but I’m decided that as an elderly aunt of mine who is 98 years old quotes all the time .. one day at a time . My next chemo is next Thursday so 🤞 my bloods hold up ( yesterday bloods looked good 👍)

Thankyou again to everyone for your support and messages have a good day wherever you are x Chris

[mrsjsmith]

Chris morning,

I won’t say it’s good news, but it’s good that you at long last have a diagnosis and a treatment in place. Hopefully every 21 days sounds very manageable. Your aunt sounds marvellous 🤞

Colette x

[Hilo13 in reply to mrsjsmith]

Thankyou x

[Sepsur]

best wishes with your on going treatment

[Jooby59]

Really hope things go well. I was so ill that I was in a wheelchair in December but thanks to fantastic new treatment I have never felt better. In fact, off for a 3 week tour of Scotland next week. Never ever give up hope. X

[Hilo13 in reply to Jooby59]

Thankyou great news about your recovery and positive too enjoy Scotland beautiful country x

[CycleWonder]

Hilo13 - You sound much more at ease now that there is a plan and you know what is going on. Your confidence is half the battle. Hopefully the treatment will work well and you will tolerate it well.

Please keep us posted as you are able.

[Hilo13 in reply to CycleWonder]

thankyou as I said my mantra is … one day at a time … x Chris

[Peggy4]

Good to have a diagnosis even if not one you’d wish for.

Best of luck going forward.

Peggy

[Jm954 Administrator]

I thought it would be anaplastic NH Lymphoma. Well, the correct diagnosis means that you can get the correct treatment now which can only be good.

Wishing you all the very best. Please keep us updated x

[Hilo13 in reply to Jm954]

Thankyou it’s good to hear someone actually say it out loud x

[Teresa252]

Wishing you strength to get through the treatment. I agree with the one day at a time mantra. Hoping the treatment isn't too harsh. Take care of yourself

[Adlucy]

Wishing you all the very best with your treatment, Chris. You must be feeling so relieved to have the diagnosis and to feel confidence in your consultant.

[Sanders9]

Hi Chris not what you hoped to hear but having a plan seems to have settled your mind. You have a great mindset and I wish you well with your treatment. One day at a time is the way

[Sues44]

sending prayers and good luck for your treatment!

[PaulaRichmond]

Prayed for your ease of treatment and healing.

[Fran57]

Sounds like you have the right attitude towards the treatment plan and I hope it goes really well.

Thinking of you,

Fran 🤗

[Otterblue2]

Great attitude! That makes a huge difference. You are so resilient. I wish you the best possible outcome

[ladyscream]

One day at a time sounds just right, sending you lots of warm wishes for successful treatment and a smooth journey through your chemotherapy.

[Danie50]

hey hey ! Wow ! You truly are a rare unique being !!🤎🧡🤗how did they come up with this conclusion. I know you feel better somewhat ! But like you said, there is a plan ! So that's a start ! One day at a time! Yes ! Please keep us updated on things !🤗🧡🤎

[DoriZett]

Having answers and a plan always makes me feel better - even if the plan isn't an easy one. We are sending you support and strength to navigate yourself to the other side of this and wishes for the easiest path possible. Blessings and positivity surround you and yours. Onward!

[Stamphappy]

Wishing you all the best with your treatment!! Warmest hugs! Glad you have some answers and a plan. ❤️

[bennevisplace]

Very best wishes Hilo13.