Posts - BWS Support | HealthUnlocked

BWS Support

713 members•196 posts

Sort posts by:

joint pain

hi guys, I’ve recently started going to the gym for about 3 months ish. My left leg (which is my overgrowth side) has grown 5 inches bigger than the left...

hi guys, I’ve recently started going to the gym for about 3 months ish. My left ...

Chrissy24

•2 years ago

1 Reply

Need help with finding TR surgeon in California

Hi I’m looking for a very good craniofacial center, or surgeons who are experienced with TR in California. My son is 5 months old.

Hi I’m looking for a very good craniofacial center, or surgeons who are experien...

Katheryn9

•2 years ago

1 Reply

Likelyhood it's BWS

Hi my daughter has posterior helical ear pits, 100th percentile birth weight, umbilical hernia and disecti recti, a stork mark birth mark and I had...

Hi my daughter has posterior helical ear pits, 100th percentile birth weight, um...

TWmam

•2 years ago

1 Reply

Want to take advantage of all our features? Just log in!

First International BWS Congress

The Italian group are hosting the above from 2 to 5 June in Cervia. The programme and registration form can be found at https://2022.aibws.org/en/ Attendance...

The Italian group are hosting the above from 2 to 5 June in Cervia. The programm...

RGBaker

•3 years ago

Be the first to reply

COVID 19 and BWS

This information comes from medical specialists: In general, based on current understanding of BWS, there does not seem to be a specific effect on the immune...

This information comes from medical specialists: In general, based on current un...

BobBaker

Administrator•5 years ago

Be the first to reply

Help with research

An organisation called Grobal is compiling growth charts for ten different syndromes, BWS being one of them. If you wold like to help please send an email to...

An organisation called Grobal is compiling growth charts for ten different syndr...

BobBaker

Administrator•5 years ago

Be the first to reply

Bws awareness

Hi ! I have recently started a website and blog about bws and am trying to raise as much awareness as I can and as u know it takes an army. ! So I’m trying to...

Hi ! I have recently started a website and blog about bws and am trying to raise...

Largerthanbws

•6 years ago

Be the first to reply

Suspect my 4 year old may have BWS

Hi, I’ve ended up here after googling ear pits and linking a few things together to come up with BWS. My 4 year old has an ear pit on the front of her right...

Hi, I’ve ended up here after googling ear pits and linking a few things together...

CFoster92

•6 years ago

2 Replies

Hungary

Dear All, Is there anybody here from Hungary or anyone who knows a contact for Hungarian doctor/team/hospital where they have ever dealt with macroglossia? My...

Dear All, Is there anybody here from Hungary or anyone who knows a contact for H...

mumfromhun

•6 years ago

2 Replies

The Secret To Successful On BBW Dating Site

You have experienced a few online BBW Sites and even joined one or two and posted your profile. Naturally, you considered or followed through on adding your...

You have experienced a few online BBW Sites and even joined one or two and post...

bigbeautifuldating

•6 years ago

Be the first to reply

9 Month Old with Signs of BWS

He was 8.1 lbs & 21.5 in at birth. He’s currently 23 lbs (I’m not sure of his height but he’s in 18 month clothes). He was born with a fontanelle that was...

He was 8.1 lbs & 21.5 in at birth. He’s currently 23 lbs (I’m not sure of his he...

faithstaton

•6 years ago

1 Reply

Bws and adhd?

I have a 7 year old son with bws who was diagnosed a few months after birth. He had successful operation at birth to put bowel back in and tongue reduction...

I have a 7 year old son with bws who was diagnosed a few months after birth. He ...

familyfour

•7 years ago

11 Replies

macroglossia

Hi I’m 33 weeks pregnant and I thought all my pregency that my baby was healthy and I’ve recently moved to London from Bristol so I had to get my notes...

Hi I’m 33 weeks pregnant and I thought all my pregency that my baby was healthy ...

Denise2018

•7 years ago

12 Replies

Is this syndrome linked to incest?

Hi. I hasyndroMy ephews with BWS. They are in their late 20s and seem to be doing well. I was wondering if anyone has mental health issues or addiction that is...

Hi. I hasyndroMy ephews with BWS. They are in their late 20s and seem to be doin...

Larosa

•7 years ago

1 Reply

Tongue reduction operations for adults

Have had an enquiry from an adult aged 64 who is having considerable problems caused by an enlarged tongue. He needs a proper assessment to see if a tongue...

Have had an enquiry from an adult aged 64 who is having considerable problems ca...

BobBaker

Administrator•7 years ago

Be the first to reply

Help

My 3 week old daughter had been diagnosed as BWS she had an omphlas at birth which has been put in thro surgery still waiting to see her doctor any advice...

My 3 week old daughter had been diagnosed as BWS she had an omphlas at birth whi...

sharon1975

•7 years ago

1 Reply

Welcome!

Hi. It's scary when you first get the diagnosis but it really does get easier. The first year is probably the hardest as you come to terms with the diagnosis...

Hi. It's scary when you first get the diagnosis but it really does get easier. T...

SarahMorgan

•7 years ago

4 Replies

BWS CONFIRMED

Hi all had my sons genetic tests back he has been confirmed with having BWS. Genetics dr said a lot to me and was hard to take in to be honest. She mentioned...

Hi all had my sons genetic tests back he has been confirmed with having BWS. Gen...

Sharron16

•7 years ago

6 Replies

BWS

Good morning..who's here? My daughter was recently diagnosed with BWS.

Mistiwhitehead

•8 years ago

2 Replies

Hi new here from England!

Hi i'm Sharron My son is 7 months old and we are currently waiting genetic blood tests back to see if he has BWS. He has already been diagnosed with...

Hi i'm Sharron My son is 7 months old and we are currently waiting genetic blood...

Sharron16

•8 years ago

23 Replies

My bws 42 years later

daughter waseathek them four month bthe doctor who delivered hero send her right away to Chapel Hill in North Carolina where we live the pediatrician I hired...

daughter waseathek them four month bthe doctor who delivered hero send her righ...

sanjay43

•8 years ago

6 Replies

Hello xxx

Hi, my name is Nic and I have a wonderful 6 yr old diagnosed with BWS immediately after birth and confirmed shortly after. If anyone would like to chat about...

Hi, my name is Nic and I have a wonderful 6 yr old diagnosed with BWS immediatel...

NoahsMummy1

•8 years ago

5 Replies

Hello all please help

charlilrileycharlilriley 4 months ago 0 Replies Hi all, my son turned 2 last friday, on monday we were told he has cystic kidney disease (due to the bws) he...

charlilrileycharlilriley 4 months ago 0 Replies Hi all, my son turned 2 last fri...

charlilriley

•8 years ago

Be the first to reply

BWS Support for BabyJaG

Hi everyone, my baby was just diagnosed with BWS and I must admit I've been a nervous wreck the last few days after the diagnosis. I'm hoping that this...

Hi everyone, my baby was just diagnosed with BWS and I must admit I've been a ne...

Babyjag

•8 years ago

2 Replies

What are the chances of 2nd baby having BWS

Hi my name it's Mary I'm 26, I have a 7 yr old with BWS, she was diagnosed with BWS while I was 4 months pregnant. She's had a lot of medical problems in the...

Hi my name it's Mary I'm 26, I have a 7 yr old with BWS, she was diagnosed with ...

Mspell22

•8 years ago

3 Replies

6 yr old with BWS diagnosed at 3 weeks of age

Hi everyone, my son, Liam is 6 and s BWS which was diagnosed at 3 weeks of age. He is considered to have a "mild" case and has been monitored in increments...

Hi everyone, my son, Liam is 6 and s BWS which was diagnosed at 3 weeks of age. ...

Liam2010

•8 years ago

Be the first to reply

Tongue reduction

Hello...My Name is Pasha and I live in Uganda. I have a daughter that might have BWS..she was born with an omphalocele that was repaired soon after birth. She...

Hello...My Name is Pasha and I live in Uganda. I have a daughter that might have...

paska

•8 years ago

3 Replies

Asking about Tongue reduction surgery places.. Other than Gosh

Hi all, I have a 4 months old baby with Bws and macroglossia.. wish to have the surgery for her in 2 months.. I have been mailing GOSH for a few weeks now.....

Hi all, I have a 4 months old baby with Bws and macroglossia.. wish to have th...

Gloria2

•8 years ago

5 Replies

Just Found Out About BWS

I am a 68 year old male in the U.S. I had macroglassia as a newborn along with the strawberry forehead mark and a hernia. The macroglassia was surgically...

I am a 68 year old male in the U.S. I had macroglassia as a newborn along with t...

danielb59

•8 years ago

3 Replies

Cystic kidney disease (bws)

Hi all, my son turned 2 last friday, on monday we were told he has cystic kidney disease (due to the bws) he already had bilateral hydrophronesis and up until...

Hi all, my son turned 2 last friday, on monday we were told he has cystic kidney...

charlilriley

•8 years ago

Be the first to reply

Write a post or ask a question

Search posts

Pinned Posts

See all

Gentle reminder from BWS admin

Latest poll

See all polls

Where in the world are you?

Vote

Topics

All posts(7)

All things BWS Support(7)

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.

Posts - BWS Support | HealthUnlocked

BWS Support

joint pain

Need help with finding TR surgeon in California

Likelyhood it's BWS

First International BWS Congress

COVID 19 and BWS

Help with research

Bws awareness

Suspect my 4 year old may have BWS

Hungary

The Secret To Successful On BBW Dating Site

9 Month Old with Signs of BWS

Bws and adhd?

macroglossia

Is this syndrome linked to incest?

Tongue reduction operations for adults

Help

Welcome!

BWS CONFIRMED

BWS

Hi new here from England!

My bws 42 years later

Hello xxx

Hello all please help

BWS Support for BabyJaG

What are the chances of 2nd baby having BWS

6 yr old with BWS diagnosed at 3 weeks of age

Tongue reduction

Asking about Tongue reduction surgery places.. Other than Gosh

Just Found Out About BWS

Cystic kidney disease (bws)

Search posts

Pinned Posts

Latest poll

Where in the world are you?

Topics

Archive