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BWS Support
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Help with research

An organisation called Grobal is compiling growth charts for ten different syndr...

Bws awareness

Hi ! I have recently started a website and blog about bws and am trying to raise...

Suspect my 4 year old may have BWS

Hi, I’ve ended up here after googling ear pits and linking a few things together...

Hungary

Dear All, Is there anybody here from Hungary or anyone who knows a contact for H...

The Secret To Successful On BBW Dating Site 

You have experienced a few online BBW Sites and even joined one or two and post...

9 Month Old with Signs of BWS

He was 8.1 lbs & 21.5 in at birth. He’s currently 23 lbs (I’m not sure of his he...

Bws and adhd?

I have a 7 year old son with bws who was diagnosed a few months after birth. He ...

macroglossia

Hi I’m 33 weeks pregnant and I thought all my pregency that my baby was healthy ...

Is this syndrome linked to incest?

Hi. I hasyndroMy ephews with BWS. They are in their late 20s and seem to be doin...

Tongue reduction operations for adults

Have had an enquiry from an adult aged 64 who is having considerable problems ca...

Help

My 3 week old daughter had been diagnosed as BWS she had an omphlas at birth whi...

Welcome!

Hi. It's scary when you first get the diagnosis but it really does get easier. T...

BWS CONFIRMED

Hi all had my sons genetic tests back he has been confirmed with having BWS. Gen...

BWS

Good morning..who's here? My daughter was recently diagnosed with BWS.

Hi new here from England!

Hi i'm Sharron My son is 7 months old and we are currently waiting genetic blood...

My bws 42 years later

daughter waseathek them four month bthe doctor who delivered hero send her righ...

Hello xxx

Hi, my name is Nic and I have a wonderful 6 yr old diagnosed with BWS immediatel...

Hello all please help

charlilrileycharlilriley 4 months ago 0 Replies Hi all, my son turned 2 last fri...

BWS Support for BabyJaG

Hi everyone, my baby was just diagnosed with BWS and I must admit I've been a ne...

What are the chances of 2nd baby having BWS

Hi my name it's Mary I'm 26, I have a 7 yr old with BWS, she was diagnosed with ...

6 yr old with BWS diagnosed at 3 weeks of age

Hi everyone, my son, Liam is 6 and s BWS which was diagnosed at 3 weeks of age. ...

Tongue reduction

Hello...My Name is Pasha and I live in Uganda. I have a daughter that might have...

Asking about Tongue reduction surgery places.. Other than Gosh

Hi all, I have a 4 months old baby with Bws and macroglossia.. wish to have th...

Just Found Out About BWS

I am a 68 year old male in the U.S. I had macroglassia as a newborn along with t...

Cystic kidney disease (bws)

Hi all, my son turned 2 last friday, on monday we were told he has cystic kidney...

hemihypertrophy and BWS

My son has 3 years old age and he has BWS. We didn't know about this syndrom unt...

Rise and fall of AFP

Hi! My son is 22 months, and so far has only been diagnosed with hemihypertrophy...

Gentle reminder from BWS admin

Note to all members. Please bear in mind that this site is for parents to collab...

Questions

Hi my daughter was clinically diagnosed with bws we r waiting on the blood resul...

terrified mama.

so we went to the pediatrician and were told he'd like our 5 month old to get te...
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