My bws 42 years later
sanjay437 days ago
daughter waseathek them four month bthe doctor who delivered hero send her right away to Chapel Hill in North Carolina where we live the pe...
NoahsMummy1a month ago
Hi, my name is Nic and I have a wonderful 6 yr old diagnosed with BWS immediately after birth and confirmed shortly after. If anyone would ...
5 Replies5 Likes
Hello all please help
charlilriley2 months ago
charlilrileycharlilriley 4 months ago 0 Replies
Hi all, my son turned 2 last friday, on monday we were told he has cystic kidney disease (due...
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BWS Support for BabyJaG
Babyjag2 months ago
Hi everyone, my baby was just diagnosed with BWS and I must admit I've been a nervous wreck the last few days after the diagnosis. I'm hopi...
2 Replies1 Like
What are the chances of 2nd baby having BWS
Mspell224 months ago
Hi my name it's Mary I'm 26, I have a 7 yr old with BWS, she was diagnosed with BWS while I was 4 months pregnant. She's had a lot of medica...
6 yr old with BWS diagnosed at 3 weeks of age
Liam20104 months ago
Hi everyone, my son, Liam is 6 and s BWS which was diagnosed at 3 weeks of age. He is considered to have a "mild" case and has been monitore...
paska5 months ago
Hello...My Name is Pasha and I live in Uganda.
I have a daughter that might have BWS..she was born with an omphalocele that was repaired soon...
Asking about Tongue reduction surgery places.. Other than Gosh
Gloria25 months ago
I have a 4 months old baby with Bws and macroglossia.. wish to have the surgery for her in 2 months..
I have been mailing GOSH for ...
Just Found Out About BWS
danielb595 months ago
I am a 68 year old male in the U.S. I had macroglassia as a newborn along with the strawberry forehead mark and a hernia. The macroglassia ...
3 Replies3 Likes
Cystic kidney disease (bws)
charlilriley6 months ago
Hi all, my son turned 2 last friday, on monday we were told he has cystic kidney disease (due to the bws) he already had bilateral hydrophro...
hemihypertrophy and BWS
Alina_n7 months ago
My son has 3 years old age and he has BWS. We didn't know about this syndrom until now.
We received the results from genetic test a month ago...
Rise and fall of AFP
cmr20107 months ago
Hi! My son is 22 months, and so far has only been diagnosed with hemihypertrophy. We have started the BWS tests through our geneticist, but ...
Gentle reminder from BWS admin
daisyduck8 months ago
Note to all members.
Please bear in mind that this site is for parents to collaborate with one another and share experiences and advice. It i...
Ssteudeman928 months ago
Hi my daughter was clinically diagnosed with bws we r waiting on the blood results to conform it she is five months old and I was wondering ...
chloesmamaxo8 months ago
so we went to the pediatrician and were told he'd like our 5 month old to get tested for BWS. I ran into an article about bws and brought up...
bws with incontinence
mychild9 months ago
Hi , my child has BWS and she is currently suffering from incontinence she has done a ultrasound to her bladder and was normal , has anyone ...
BWS Teen with calcification in kidneys
AkRosanna9 months ago
We just found out that I was supposed to be doing an annual screening for calcification in the kidneys. I hadn't done any screenings...
Tongue reduction for adults
BobBaker9 months ago
Have just had an enquiry from someone who has suffered from macroglossia for around 50 years. Is anyone aware of a tongue reduction operatio...
Is it BWS?
Jofus9 months ago
Hi, I've just joined the group looking for answers as my son doesn't have a diagnosis but he has so many characteristics of BWS.
Teenager with BWS
vetsjs19 months ago
Hello, my son was diagnosed(presumptively with BWS at around 6 months of age) There was no test available at the time. His blood was banked ...
Beckwith widermann syndrome child
ayuz9 months ago
Hello and good morning friend,my name is ayu..i'm from malaysia..actually i just want to share about all my child have genetic disorder and ...
Breakdown of genetic results
Marie-200410 months ago
My son was born in Dec 2015 and diagnosed in February with BWS. I have seen a number of mention about sub groups of the BWS genetic di...
BobBaker10 months ago
Have just had an email from a parent and wonder if anyone can help. The question raised is as follows:
My question pertains to his growth. n...
3 Replies1 Like
Any clear answers would be appreciated on enlarged organs!
Mandrewsfred10 months ago
Have a few questions that haven't been answered satisfactory by any of our physicians and hope some one with more knowledge could help! My d...
BobBakera year ago
I have just had an enquiry from a mother of a 16 year old who has hemihpertrophy. She has a difference of some 4 centimetres in her leg leng...
COngratulations on the birth of your daughter. Our son Tom has BWS and is now 33 with three lovely children of his own. If you live in the U...
1 Reply1 Like
Jomaloua year ago
Hi!!!I'm new at the group!!+My daughter was diagnosed with BWS she is 7months old now!!!I'm so happy to found this group !so looking forward...
5 Replies1 Like
KimHarrisa year ago
I was born on April 11, 1992 at Home Hospital in Lafayette, Indiana and i weighted 14lbs and 14ozs and i was 3 weeks early and had a 50/50 c...
2 Replies2 Likes
Related health issues?
Rmgallupa year ago
My daughter has bws. And has been hospitalized. Several times now. Doctors think something is wrong with her lungs but have no answers. Doct...
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