mumfromhun3 months ago
Is there anybody here from Hungary or anyone who knows a contact for Hungarian doctor/team/hospital where they have ever dealt with...
The Secret To Successful On BBW Dating Site
bigbeautifuldating4 months ago
You have experienced a few online BBW Sites and even joined one or two and posted your profile. Naturally, you considered or followed throug...
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9 Month Old with Signs of BWS
faithstaton5 months ago
He was 8.1 lbs & 21.5 in at birth. He’s currently 23 lbs (I’m not sure of his height but he’s in 18 month clothes). He was born with a fonta...
Bws and adhd?
familyfour8 months ago
I have a 7 year old son with bws who was diagnosed a few months after birth. He had successful operation at birth to put bowel back in and t...
Denise20189 months ago
Hi I’m 33 weeks pregnant and I thought all my pregency that my baby was healthy and I’ve recently moved to London from Bristol so I had to ...
Is this syndrome linked to incest?
Larosaa year ago
Hi. I hasyndroMy ephews with BWS. They are in their late 20s and seem to be doing well. I was wondering if anyone has mental health issues o...
Tongue reduction operations for adults
BobBakera year ago
Have had an enquiry from an adult aged 64 who is having considerable problems caused by an enlarged tongue. He needs a proper assessment to ...
sharon1975a year ago
My 3 week old daughter had been diagnosed as BWS she had an omphlas at birth which has been put in thro surgery still waiting to see her do...
SarahMorgana year ago
Hi. It's scary when you first get the diagnosis but it really does get easier. The first year is probably the hardest as you come to terms w...
Sharron16a year ago
Hi all had my sons genetic tests back he has been confirmed with having BWS. Genetics dr said a lot to me and was hard to take in to be hone...
Mistiwhitehead2 years ago
Good morning..who's here? My daughter was recently diagnosed with BWS.
Hi new here from England!
Sharron162 years agoPOPULAR
Hi i'm Sharron My son is 7 months old and we are currently waiting genetic blood tests back to see if he has BWS. He has already been diagno...
My bws 42 years later
sanjay432 years ago
daughter waseathek them four month bthe doctor who delivered hero send her right away to Chapel Hill in North Carolina where we live the pe...
6 Replies1 Like
NoahsMummy12 years ago
Hi, my name is Nic and I have a wonderful 6 yr old diagnosed with BWS immediately after birth and confirmed shortly after. If anyone would ...
5 Replies6 Likes
Hello all please help
charlilriley2 years ago
charlilrileycharlilriley 4 months ago 0 Replies
Hi all, my son turned 2 last friday, on monday we were told he has cystic kidney disease (due...
BWS Support for BabyJaG
Babyjag2 years ago
Hi everyone, my baby was just diagnosed with BWS and I must admit I've been a nervous wreck the last few days after the diagnosis. I'm hopi...
2 Replies1 Like
What are the chances of 2nd baby having BWS
Mspell222 years ago
Hi my name it's Mary I'm 26, I have a 7 yr old with BWS, she was diagnosed with BWS while I was 4 months pregnant. She's had a lot of medica...
6 yr old with BWS diagnosed at 3 weeks of age
Liam20102 years ago
Hi everyone, my son, Liam is 6 and s BWS which was diagnosed at 3 weeks of age. He is considered to have a "mild" case and has been monitore...
paska2 years ago
Hello...My Name is Pasha and I live in Uganda.
I have a daughter that might have BWS..she was born with an omphalocele that was repaired soon...
Asking about Tongue reduction surgery places.. Other than Gosh
Gloria22 years ago
I have a 4 months old baby with Bws and macroglossia.. wish to have the surgery for her in 2 months..
I have been mailing GOSH for ...
Just Found Out About BWS
danielb592 years ago
I am a 68 year old male in the U.S. I had macroglassia as a newborn along with the strawberry forehead mark and a hernia. The macroglassia ...
3 Replies4 Likes
Cystic kidney disease (bws)
Hi all, my son turned 2 last friday, on monday we were told he has cystic kidney disease (due to the bws) he already had bilateral hydrophro...
hemihypertrophy and BWS
Alina_n2 years ago
My son has 3 years old age and he has BWS. We didn't know about this syndrom until now.
We received the results from genetic test a month ago...
Rise and fall of AFP
cmr20102 years ago
Hi! My son is 22 months, and so far has only been diagnosed with hemihypertrophy. We have started the BWS tests through our geneticist, but ...
Gentle reminder from BWS admin
daisyduck2 years ago
Note to all members.
Please bear in mind that this site is for parents to collaborate with one another and share experiences and advice. It i...
Ssteudeman922 years ago
Hi my daughter was clinically diagnosed with bws we r waiting on the blood results to conform it she is five months old and I was wondering ...
chloesmamaxo2 years ago
so we went to the pediatrician and were told he'd like our 5 month old to get tested for BWS. I ran into an article about bws and brought up...
bws with incontinence
mychild2 years ago
Hi , my child has BWS and she is currently suffering from incontinence she has done a ultrasound to her bladder and was normal , has anyone ...
BWS Teen with calcification in kidneys
AkRosanna2 years ago
We just found out that I was supposed to be doing an annual screening for calcification in the kidneys. I hadn't done any screenings...
Tongue reduction for adults
BobBaker2 years ago
Have just had an enquiry from someone who has suffered from macroglossia for around 50 years. Is anyone aware of a tongue reduction operatio...
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