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BWS Support

713 members•196 posts

All posts for July 2015

New leaflet on BWS, including information on genetics, from GOSH now available

Great Ormond Street Hospital have produced a new information sheet on BWS. It includes the long awaited information on genetics and screening advice for...

Great Ormond Street Hospital have produced a new information sheet on BWS. It i...

Songbird63

Administrator•10 years ago

2 Replies

Questions...

Hi, I am mom of a 2 month baby girl with BWS. She was born at 31 weeks (7 months). After 6 weeks at the NICU, she was released at home on July 7. She has...

Hi, I am mom of a 2 month baby girl with BWS. She was born at 31 weeks (7 months...

Amh22

•10 years ago

6 Replies

Three month old diagnosed with BWS

Hello! I'm hoping to connect with others that have children with BWS. My 3 month old was diagnosed six weeks ago. He has macroglossia, hernia, and ear pits. We...

Hello! I'm hoping to connect with others that have children with BWS. My 3 month...

hroussel

•10 years ago

10 Replies

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BWS & HI

Hi, I'm a newbie here with my first post, I have a 1year and 20month old baby girl born with BWS and HI (Congenital Hyperinsulinism). At the moment she has the...

Hi, I'm a newbie here with my first post, I have a 1year and 20month old baby gi...

--PO--

•10 years ago

7 Replies

Beckwith weidemann syndrome

Hi i have 2 grown men in there late twenties with BWS who have had various health problems in there liftime and to this day my youngest who is 28 still has...

Hi i have 2 grown men in there late twenties with BWS who have had various healt...

jools1234

•10 years ago

6 Replies

Genetic testing

If genetic testing comes back negative what are the next steps? Is it possible to have bws and it not show up? Also should doctors still follow protocol with...

If genetic testing comes back negative what are the next steps? Is it possible t...

Babymaddie1

•10 years ago

10 Replies

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Posts - BWS Support | HealthUnlocked

BWS Support

All posts for July 2015

New leaflet on BWS, including information on genetics, from GOSH now available

Questions...

Three month old diagnosed with BWS

BWS & HI

Beckwith weidemann syndrome

Genetic testing

Search posts

Pinned Posts

Latest poll

Where in the world are you?

Topics

Archive