BWS Support

BWS Support

BWS Support

A community dedicated to supporting those with Beckwith-Wiedemann Syndrome (BWS), which is an overgrowth disorder.Read more

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  • Hi My daughter was born on 35th week with large omphalocele. Her weight was 2kg 645grams (5.83 pounds). Blood test was taken and after...

    By 2 Replies
  • Dennis was born with an omphalocele at 35 weeks. His weight was 7pounds and 8 ounces. He also has a large tongue and other issues that has...

    By 4 Replies
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    Hello, hopefully someone will help me here since I have been searching for an answer for some time now. My boy was born 6 months ago. He...

    By 7 Replies
  • I have been approached by the BBC regarding a programme they are making relating to the 9 months of pregnancy. They want to include a short...

    By 2 Replies
  • Hello, My 6 month old daughter has some of the symptoms of BWS and I just want to see what you guys think before I schedule her to see her...

    By 3 Replies
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    Hello, My 6 month old daughter has some of the symptoms of BWS and I just want to see what you guys think before I schedule her to see her...

    By 1 Reply
  • Hi my baby has bws and is 5,week old.he is strugeling feeding from bottle.does enyone recomend eny certian products,tips or info please...

    By 6 Replies
  • Hi my baby has a mild case of BWS. She has ear pits,large birth weight and large tongue! But our genetic testing came back positive for BWS...

    By 4 Replies
  • I'm liel, i'm 29, i have BWS and my boyfriend and I want to have a baby. I want to find out what are the chances that my child will be born...

    By 2 Replies
  • I have BWS and my boyfriend and I want to have a baby. I am not sure if me having BWS will prevent me getting pregnant and having a healthy...

    By 2 Replies
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    My 5 year old diagnosed with bws at 2 weeks old. She was 6 weeks premature and had a lot of the characteristics. Since she has been seeing a...

    By 3 Replies
  • he was born 6 months ago spent 1 month in scbu speacil care unit as couldnt control his sugar levels to low not found reason why..eventually...

    By 1 Reply
  • My son has BWS and is now 13 years old. We've had issues with his behaviour since he was 18 months old. I've been trying to get him help...

    By 5 Replies
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    Is there anyway to evaluate by my self if my child most likely will need a surgery or not. I fed up with doctors here no answer at all...

    By 4 Replies
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    Here is a picture of Joshua

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