BWS Support | HealthUnlocked

Hi All My daughter has IC2 LOM She has macroglossia and other suggestive features but not the hemihypertrophy. Do the children with all kind of genetic...

hi guys, I’ve recently started going to the gym for about 3 months ish. My left leg (which is my overgrowth side) has grown 5 inches bigger than the left...

Hi I’m looking for a very good craniofacial center, or surgeons who are experienced with TR in California. My son is 5 months old.

Hi my daughter has posterior helical ear pits, 100th percentile birth weight, umbilical hernia and disecti recti, a stork mark birth mark and I had...

The Italian group are hosting the above from 2 to 5 June in Cervia. The programme and registration form can be found at https://2022.aibws.org/en/ Attendance...

This information comes from medical specialists: In general, based on current understanding of BWS, there does not seem to be a specific effect on the immune...

An organisation called Grobal is compiling growth charts for ten different syndromes, BWS being one of them. If you wold like to help please send an email to...

Hi ! I have recently started a website and blog about bws and am trying to raise as much awareness as I can and as u know it takes an army. ! So I’m trying to...

Hi, I’ve ended up here after googling ear pits and linking a few things together to come up with BWS. My 4 year old has an ear pit on the front of her right...

Dear All, Is there anybody here from Hungary or anyone who knows a contact for Hungarian doctor/team/hospital where they have ever dealt with macroglossia? My...

You have experienced a few online BBW Sites and even joined one or two and posted your profile. Naturally, you considered or followed through on adding your...

He was 8.1 lbs & 21.5 in at birth. He’s currently 23 lbs (I’m not sure of his height but he’s in 18 month clothes). He was born with a fontanelle that was...

I have a 7 year old son with bws who was diagnosed a few months after birth. He had successful operation at birth to put bowel back in and tongue reduction...

Hi I’m 33 weeks pregnant and I thought all my pregency that my baby was healthy and I’ve recently moved to London from Bristol so I had to get my notes...

Hi. I hasyndroMy ephews with BWS. They are in their late 20s and seem to be doing well. I was wondering if anyone has mental health issues or addiction that is...

Have had an enquiry from an adult aged 64 who is having considerable problems caused by an enlarged tongue. He needs a proper assessment to see if a tongue...

My 3 week old daughter had been diagnosed as BWS she had an omphlas at birth which has been put in thro surgery still waiting to see her doctor any advice...

Hi. It's scary when you first get the diagnosis but it really does get easier. The first year is probably the hardest as you come to terms with the diagnosis...

Hi all had my sons genetic tests back he has been confirmed with having BWS. Genetics dr said a lot to me and was hard to take in to be honest. She mentioned...

Good morning..who's here? My daughter was recently diagnosed with BWS.

Hi i'm Sharron My son is 7 months old and we are currently waiting genetic blood tests back to see if he has BWS. He has already been diagnosed with...

daughter waseathek them four month bthe doctor who delivered hero send her right away to Chapel Hill in North Carolina where we live the pediatrician I hired...

Hi, my name is Nic and I have a wonderful 6 yr old diagnosed with BWS immediately after birth and confirmed shortly after. If anyone would like to chat about...

charlilrileycharlilriley 4 months ago 0 Replies Hi all, my son turned 2 last friday, on monday we were told he has cystic kidney disease (due to the bws) he...

Hi everyone, my baby was just diagnosed with BWS and I must admit I've been a nervous wreck the last few days after the diagnosis. I'm hoping that this...

Hi my name it's Mary I'm 26, I have a 7 yr old with BWS, she was diagnosed with BWS while I was 4 months pregnant. She's had a lot of medical problems in the...

Hi everyone, my son, Liam is 6 and s BWS which was diagnosed at 3 weeks of age. He is considered to have a "mild" case and has been monitored in increments...

Hello...My Name is Pasha and I live in Uganda. I have a daughter that might have BWS..she was born with an omphalocele that was repaired soon after birth. She...

Hi all, I have a 4 months old baby with Bws and macroglossia.. wish to have the surgery for her in 2 months.. I have been mailing GOSH for a few weeks now.....

I am a 68 year old male in the U.S. I had macroglassia as a newborn along with the strawberry forehead mark and a hernia. The macroglassia was surgically...