BWS Support
527 members181 posts
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Bws and adhd?

I have a 7 year old son with bws who was diagnosed a few months after birth. He ...

macroglossia

Hi I’m 33 weeks pregnant and I thought all my pregency that my baby was healthy ...

Is this syndrome linked to incest?

Hi. I hasyndroMy ephews with BWS. They are in their late 20s and seem to be doin...

Tongue reduction operations for adults

Have had an enquiry from an adult aged 64 who is having considerable problems ca...

Help

My 3 week old daughter had been diagnosed as BWS she had an omphlas at birth whi...
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About us

A community dedicated to supporting those with Beckwith-Wiedemann Syndrome (BWS), which is an overgrowth disor... Read more