BWS Support

BWS Support

BWS Support

A community dedicated to supporting those with Beckwith-Wiedemann Syndrome (BWS), which is an overgrowth disorder.Read more

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  • hi, I'm posting with hope of some answered questions about my daughter. as from the very first scan during pregnancy we were told out baby...

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    Hello, my son is 7 months old and we are currently undergoing genetic testing to find out if he does indeed have BWS. He seems to be a bit...

    By 2 Replies
  • Hi there I have a 2 year old boy who has bws he also had his bowels on the outside he has had 3 operations to repair his bowels also a...

  • Anyone please advise me some heart speacalist and liver cancer speacaliat for bws baby's

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  • Hya I am just wonder if you could give me advise on a rally sariouse matter my boy who is 5 month old has bws he also has been diagnosed...

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  • Hi My daughter was born on 35th week with large omphalocele. Her weight was 2kg 645grams (5.83 pounds). Blood test was taken and after...

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  • Dennis was born with an omphalocele at 35 weeks. His weight was 7pounds and 8 ounces. He also has a large tongue and other issues that has...

    By 4 Replies
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    Hello, hopefully someone will help me here since I have been searching for an answer for some time now. My boy was born 6 months ago. He...

    By 7 Replies
  • I have been approached by the BBC regarding a programme they are making relating to the 9 months of pregnancy. They want to include a short...

    By 2 Replies
  • Hello, My 6 month old daughter has some of the symptoms of BWS and I just want to see what you guys think before I schedule her to see her...

    By 3 Replies
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    Hello, My 6 month old daughter has some of the symptoms of BWS and I just want to see what you guys think before I schedule her to see her...

    By 1 Reply
  • Hi my baby has bws and is 5,week old.he is strugeling feeding from bottle.does enyone recomend eny certian products,tips or info please...

    By 6 Replies
  • Hi my baby has a mild case of BWS. She has ear pits,large birth weight and large tongue! But our genetic testing came back positive for BWS...

    By 4 Replies
  • I'm liel, i'm 29, i have BWS and my boyfriend and I want to have a baby. I want to find out what are the chances that my child will be born...

    By 2 Replies
  • I have BWS and my boyfriend and I want to have a baby. I am not sure if me having BWS will prevent me getting pregnant and having a healthy...

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