Posts - BWS Support | HealthUnlocked

BWS Support

713 members•196 posts

All posts for April 2014

We have a suspected diagnosis of BWS, and are awaiting full genetic tests to come back. Is there anything else we should be aware of?

Our little girl is 24 days old, had an exompholas (diagnosed @ 20 weeks in utero) macrosomia - 9lb 2ozs @ birth, hypoglycaemic episodes at birth and after...

Our little girl is 24 days old, had an exompholas (diagnosed @ 20 weeks in utero...

munchkinsmummy2007

•11 years ago

5 Replies

Does anyone have a BWS child that has successfully learned to communicate after tongue reduction surgery?

My son Myles will be 3 next month. He has BWS and had tongue reduction surgery when he was 20 months old. He has always been a bit behind his peers, but he was...

My son Myles will be 3 next month. He has BWS and had tongue reduction surgery w...

nancyc

•11 years ago

6 Replies

Beckwith Wiedemann Syndrome

I was diagnosed with the syndrome in 1969! I have had numerous surgeries as well as many other tests & procedures over the years! I was 1 of the 1st cases in...

I was diagnosed with the syndrome in 1969! I have had numerous surgeries as well...

BigSissy45

•11 years ago

21 Replies

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I have a little boy with BWS and also has hemihypertrophy but only isolated to his left leg he doesnt have any other enlargement to any

Other part of his body, is there anyone who has a child in the same situation??

hannahwelshy84

•11 years ago

14 Replies

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Posts - BWS Support | HealthUnlocked

BWS Support

All posts for April 2014

We have a suspected diagnosis of BWS, and are awaiting full genetic tests to come back. Is there anything else we should be aware of?

Does anyone have a BWS child that has successfully learned to communicate after tongue reduction surgery?

Beckwith Wiedemann Syndrome

I have a little boy with BWS and also has hemihypertrophy but only isolated to his left leg he doesnt have any other enlargement to any

Search posts

Pinned Posts

Latest poll

Where in the world are you?

Topics

Archive