Hello...My Name is Pasha and I live in Uganda.
I have a daughter that might have BWS..she was born with an omphalocele that was repaired soon after birth.
She also has a large tongue that will soon be reduced. Her tongue reduction will be done in January next year.
This condition is very rare in Uganda and I haven't met anyone with it ...
I am worried about how I will feed my daughter soon after it is done. What special bottles that may be useful, any recommended foods, and any other tips or things I might need to carry to the hospital and need soon after we are discharged.