ELP Private NAFLD, HEP A, : Hi, I have... - British Liver Trust

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ELP Private NAFLD, HEP A,

Wi-llow profile image
6 Replies

Hi, I have paid for a ELP blood test as I have had, a Fibroscan 3yrs ago, 2 ultrasound scans in the last 11 months, 3 Gastroenterologists consultants in the passed 5yrs, of which they all retired without letting me know the results of tests they ordered for me, I have a new consultant who should have been able to tell me the results of the 22 blood tests I have had in the last 11 months, only to be told they have been lost, although she did tell me I had stage 4 Fibrosis which can be reversed by losing weight, exercise and change of diet. I also have NAFLD and contracted Hepatitis A in December 2019, which seems to be the cause of my liver problems. I have rung my Gast. Cons. office every week, left msgs to ask for results with no effect to date. As you can imagine I am quite worried, so I am having my ELP blood test tomorrow in a private hospital to get some answers. I just wondered if anyone has had the same/similar experience as myself, and please if any of you believe in prayer, please can you think of me and hope for a good result when they contact me middle of next week, unless they lose them! Thanks guys.

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Wi-llow
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6 Replies
Iro1 profile image
Iro1

Sadly you are on your own with a lot of medical professionals.

But NAFLD can only be cured by you through diet and exercise and complete abstinence from alcohol

Wi-llow profile image
Wi-llow in reply to Iro1

Yep, have managed to find a physio to help me with exercise, of private. I do not, nor ever drink, so hopefully my Fibrosis will diminish and I should know something about the present condition of my Liver in a couple of days, after having had the ELF blood test today. 🤞🤞

juneblue profile image
juneblue

In the the United States it’s illegal to not show records upon request, check on the laws where you live. And yes prayer is very important. We are here for a speck of time compared to eternity. Isn’t it a wonderful feeling to know we continue on. I will say a prayer for you. God Bless.

Wi-llow profile image
Wi-llow in reply to juneblue

Many thanks for your answer and prayers. God Bless you too.

Spagbol76 profile image
Spagbol76

By law they are required to give you your records under the freedom of information. I have just recently contacted the hospital I am under filled out a simple form and anything held on my records are being sent. This is due to having three appointments with three different diagnosis. Firstly NAFLD. Then fibroscan to be told cirrhosis, diagnosis with no other tests at this point apart from bloods that was normal, followed by ultrasound to be told no signs of cirrhosis then finally a letter saying hep b and as I work in healthcare really need to know to be able to protect everyone. So please contact hospital to get records even for your own piece of mind knowing what has been recorded

Wi-llow profile image
Wi-llow in reply to Spagbol76

Thanks, I am a little nervous about doing that because Drs in general, have precious egos, they don't like it when they drop the ball. When I get my ELF result, and send copies to Consultants, GP, and they do not respond, I will take that course of action. Though I do not look forward to their response.

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