I’m Rob, I have been having regular blood tests for the last five years for NAFLD, finally had a FibroScan last week and result is 14 KPA. I am a non-smoker and I don’t drink and trying to manage it through healthy living.
I was told that I need to eat healthy and clean because GP was worried about my liver levels via various blood tests and then being referred to hospital for a FibroScan. The FibroScan results have come back very high at 14KPA. Please can anyone give me any advice about this and if this is serious or is it manageable? I have not been given any information, it is above the remit of my GP and I await my consultation which is another 5 weeks away.
Can anybody give any advice or tips to help me understand this diagnosis?
Many thanks,
Rob
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Hi I am same I had fibroscan on the 5th of April got told results or high 19.4 kpa and 350 cap nurse told me this means stage 4 fibrosis . Need to change life style. I dont drink and I don't smoke I avoid painkillers. Got told that will be referred to a liver specialist that was over 4 month ago. I have chased it up this week and been told it could be another 12-15 weeks, i am terrified
Thank you so much for your reply, it’s horrible waiting for answers and not understanding all the medical jargon. We are both in the same position of waiting for answers. Thank you again.
They also have a downloadable booklet on treating the condition with healthy diet and exercise which you can get at:- britishlivertrust.org.uk/do...
NAFLD/MASLD is the fastest rising cause of liver issues in the Western World due to our relatively poor diet, more sedentary life style and other factors. BUT it is also very responsive to positive lifestyle changes and even where a degree of fibrosis is present it is possible to improve matters greatly with better diet and more exercise.
I know they are talking long waits to see specialists but even seeing a doctor isn't going to lead to great medical inputs or treatments and it's really down to the patients themselves to do the self-care needed to treat their own condition.
You’re going about it the right way, healthy living and exercise is the way forward.
In a similar situation to you. diagnosed with cirrhosis following a fibroscan with no factors apart from abnormal blood results. Even though a healthy bmi I asked my Dr. for a referral to a dietitian to find out what I should and shouldn’t be eating. She was really good and talked about high protein foods eating little and often and having a snack just before bed, such as cereal.
Exercise is good too, so walking more l, such as to work.
It’s very difficult waiting for the appointment, but when it comes round make sure you have a list of everything you would like to know. Your GP might be worth chatting to, but I’ve found these medical people are very cautious and don’t like to step on each others toes.
Good luck and I hope you get answers and clarification soon.
In March, 2024 my wife was 14.2 kPa. In July we had a biopsy confirming Stage 3 fibrosis - almost cirosis but not there yet. She has never had alcohol in her life, not diabetic, but does suffer from recently diagnosed RA (2022). She is slightly overweight. Our goal is to lose weight! She has just started taking Rezdifra a very pricey new drug for late stage fibrosis. She is the first in our liver clinic to get aporoved for this. She has only had it a few days so we are just getting started. Will report results as they become available. Good luck!!
Has your wife had her iron levels checked? Haemochromatosis can cause fibrosis/cirrhosis due to iron overload in the liver and the associated arthritis can sometimes mimic RA.
Hi, I was diagnosed with stage 4 fibrosis kpa 17.5. Non drinker, around 18 mths ago..Since then I've lost the 2 Stonei had put on and my kpa is 11.5 now.. slowly coming down with healthy eating.. I had a normal scan also 4 mths ago which showed my blood was pumping through ok.. I'm early stage cirrhosis so going for 6 mth check ups.. but mind wise all ok.. hope all goes well at your next appointment
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