Fibroscan Date

[Sophia1968]

morning ,

My Fibroscan date has come through for 12th April, reading on here I was expecting to get the results there and then, hopefully cap and kpa but if not definitely kpa….. has anyone gone away and had the result sent in a letter by post instead … the reason I ask is because a friend of mine had this scan and she said i will not get numbers cos they won’t mean anything to me, she said her letter just told her fibrosis and then she had a biopsy which was obviously not cirrohsis was just told to come back in a few years ….. I assume if her kpa was really high they would not have needed the biopsy, im just wondering if different areas and hospitals work differently , I just assumed I would get the result , I hate waiting for a ke

[Sophia1968]

sorry I’m not sure why it posted before I had finished, and not sure how to delete lol, anyway that was all really, I just hate waiting for a letter as it makes me anxious , im glad I gave a date for this scan, but I’m scared at the same time xx

[Readlots]

Hi Sophia, I guess it could depend who is doing the fibroscan. Mine’s always done by the liver nurse and she gives me the numbers and tells me what it means there and then. I hate waiting for results too.

[Sophia1968 in reply to Readlots]

aww ok hun, thank you for your reply, I guess I will just have to wait and see… part of me wants to cancel and put my head in the sand, but I kvow I can’t, and I’m grateful for the appt, it’s just worrying what will be found, my past keeps haunting me, I used to drink so much in my twenties , a litre of spirit at a time while partying and clubbing , every weekend for a good ten years, I honestly had no idea the damage that can be done to our livers, I have learnt so much on here xx

[Readlots in reply to Sophia1968]

Lots of people on here have turned things around. The liver is a remarkable organ and when it isn’t being poisoned by alcohol or being attacked by an autoimmune disease it can repair itself. The results might not be as bad as you’re expecting, they might even reassure you so don’t cancel. Knowing what you’re dealing with is easier than dealing with what your imagination can come up with! Fingers crossed for good results

[Sophia1968]

thank you for your time readlots, I know I must drive you all nuts and I do apologise, I also appreciate your patience with me, I will definitely have the scan done, I need to put my mind at rest one way or the other, you are right, it may even help, if it’s not as bad as I am imagining, if I’m honest I’m convinced it’s cirrohosis in my head, especially after seeing people with mild fatty liver having kpa over 7, it makes me assume my severe liver must be high, my logical brain tells me that there are many different liver issues that cause different numbers…..then the other side of my brain reminds me how I felt waiting for my cancer results , I was a different person then and didn’t believe for one minute that it would come back positive, but it did and has messed me up mentally ever since, now every test I go for and every result I wait for, I’m convinced it’s as bad as it gets…. Sorry if that sounds annoyingly negative, I am now awaiting an appointment with a councillor so fingers crossed she will help me, I have refused this help in the past, but now I have decided I need help with this health anxiety, I know I am a strong person and will get on top of this and deal with whatever the problem is, I’m sorry this post ended up being so long, but again thank you so much for your time xx

[AnxiousPete in reply to Sophia1968]

I also have health anxiety and I know it can be really stressful. I am trying to take inspiration from the many lovely knowledgeable helpful people on here. When I had my cirrhosis diagnosis 7 weeks ago I thought it was the end of my world but as results have come in and reading lots of positive stuff on here I now know this can be managed. I hope your scan goes well for you but whatever the result remember liver disease can be treated and so many on here prove it can be overcome.Good luck with counselling too.

Take care of yourself

.

[Sophia1968 in reply to AnxiousPete]

thank you so much Pete for your reply and understanding; you are right, the people on here are lovely and full of knowledge , also as you say, seeing their positive stories really helps, I am sorry that you had that diagnosis, but I am glad you found this site to give you support, you really sound like you be are getting your head around it, well done and good luck going forward xx

[Readlots in reply to Sophia1968]

You’re not annoying at all. You know where your anxiety comes from and it’s totally understandable that, having had cancer, you’ll be expecting the worst. I think we all feel a bit anxious before tests and getting results. But you’re right, you are a strong woman and if it is cirrhosis you’ll deal with that, like lots of good people on here. Fingers crossed it isn’t and you get good news.

[Sophia1968 in reply to Readlots]

thank you so much readlots, I hope all will not be as bad as I imagine, it says online that a high bmi does not always give an accurate fibroscan read, do you know if that means it gives a (too) high false read, or a (too) low false read, or does it mean it may not give a read at all, lol I’m no5 worried I’m just curious and wondered if you have heard this xx

[Readlots in reply to Sophia1968]

Hi Sophia, I haven’t heard of that. My BMI is higher than it should be but my fibroscan reading was low. I don’t know if that helps at all…

[Sophia1968 in reply to Readlots]

aww ok hun, goggle again, I should know better, it prob is not even true…. I’m glad you had a low fibro score though xx

[Readlots in reply to Sophia1968]

Hopefully you will too. Ask the person who does the fibroscan if BMI makes a difference - Dr Google will give you any answer you’re looking for but not necessarily the correct one!

[Sophia1968 in reply to Readlots]

aww thank you hun. And you made me laugh cos that is so true, google will give any answer but bot always the right one, so so true xx

[BritishLiverTrust8 Moderator British Liver Trust]

Dear Sophia1968

If you [are in the UK and] would find it useful to talk things over, our nurse-led helpline is open Monday to Friday from 9am to 3pm on 0800 652 7330 (excluding bank holidays)

Best wishes

British Liver Trust

[Sophia1968 in reply to BritishLiverTrust8]

thank you so much , I might do that xx

[Taffypaul in reply to BritishLiverTrust8]

Hi Sophia I had mine done yesterday at whipps cross hospital by a lovely fibroscan operator who gave me my results there and then. I suppose it depends on the hospital / operator but I hate waiting for anything so I would ask !! Lol

[Sophia1968 in reply to Taffypaul]

aww thank you Taffy, I will definitely ask then, I hope you had a good score, I just want it done now, as you say. Waiting around for tests, od results is the worst part isn’t it xx

[Sophia1968]

thank you so much hun, that is very kind of you, I am really scared to go now, I keep thinking of little things I have wrong and assume it’s all to do with my liver, im so scared they will say I’m f4 …. I promise to come back and update you, my san is Wednesday afternoon , I know I need this but I wish I was not going lol, on a plus note I have lost 8 pounds this month and am 2 stone 8 pounds lighter than I was this time last year, weird thing is though I lost the two stone and my fatty liver increased apparently , but it was only an ultra sound, this is my first fibro scan xx

[Sophia1968]

morning Freya, you are far from batty hun, everything you say is true, I can’t keep obsessing with my liver, yes care enough to make healthy changes, but I need to stop worrying about every little symptom, on a positive note I’m hoping my score will be (realistically I already know it’s severe fatty liver) stage 3 cap with f0 kpa, now that will make my day and make me even more determined to get healthy, so fingers crossed, when is your scan then or have you not even got a date yet, did you have symptoms or a reason in particular to get it done? Sorry I kvow you prob said before but honestly my memeory is awful ( another thing I worry about lol) thanks again for your message, it means a lot xx