Accessing NHS hospital test results - British Liver Trust

British Liver Trust

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Accessing NHS hospital test results

AnxiousPete profile image
38 Replies

I'm sure I've read that we can access results for blood tests etc at hospital via the NHS app. I only seem to be able to see GP services and even then it does not have my GP surgery test results or records. The only things I can see are current and past medications going back to 2005 and my vaccination records. Can anyone advise how I can rectify this or who to contact ? Thank you - Pete

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AnxiousPete
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38 Replies
_nutella profile image
_nutella

Do you know if this service from the NHS offered in Scotland given health is devolved as I’ve never heard of it ?

AnxiousPete profile image
AnxiousPete in reply to _nutella

I don't know but AyrshireK (Katie) will know

AyrshireK profile image
AyrshireK in reply to _nutella

Ask your own GP practice - some have 'patient access' which gives online access to results ... our practice doesn't do online results, just online appointment booking, prescription ordering. We don't have access to anything from local hospital (Ayr) or Edinburgh.

DIabetic patients can log in to 'My diabetes, my way' which gives some access to blood results.

AnxiousPete profile image
AnxiousPete in reply to AyrshireK

According to NHS England there are many companies like Patient Access that offer services including one called Patients Know Best which it says can access reports and results too. I tried this but none of the options they say are available in their user manual, appear to come uo on my dashboard and my GP records only show current and past meds so I will investigate further.

digital.nhs.uk/services/gp-...

George_2017 profile image
George_2017 in reply to AyrshireK

AyrshireK, may be this is something we should be asking the Scottish Government to consider, at the moment, I understand they appear to be the stumbling block. They also did a trial where we got all out hospital appointments by secure email, which was great, but it was never fully rolled out. When GP practices are struggling, being able to access test results etc electronically would save our time, and their time. I feel a letter to the Scottish Health Secretary coming on.

wp69 profile image
wp69

I got mine from the consultants secretary via email 📧 took 5 minutes with the phone call

Redgreenblue profile image
Redgreenblue

the NHS app as far as i am aware doesn't allow you to see your hospital records, you would have to contact the relevant department for results etc . I queried similar thing in past and it only includes your GP documentation, and you have to speak with your GP to make sure what information you have access too as some can provide more than others I think it all depends on there systems capabilities ?

AnxiousPete profile image
AnxiousPete in reply to Redgreenblue

Thank you but that's not what I've just read on the Patients Know Best App manual. You can link this to hospital records apparently if your NHS provider is partneted with PKB. I am surprised you can get them emailed. Our hospital doesn't allow emailed results as email is not encrypted and therefore not secure. I have sent a tech request to the PKB and NHS on line support team for advice.

digital.nhs.uk/services/gp-...

deanw41 profile image
deanw41

Same! I always ask the consultants secretary to email my results over (including US reports).

AnxiousPete profile image
AnxiousPete in reply to deanw41

Thanks but not possible here - they won't email anything like that as not encrypted . On line access is official government policy for NHS since November 2022.

deanw41 profile image
deanw41 in reply to AnxiousPete

Oh right, where are you?

AnxiousPete profile image
AnxiousPete in reply to deanw41

North East England

Goneinsixtyseconds profile image
Goneinsixtyseconds

hi

I’m under Addenbrooks & on the my chart system, I get my results appointments aand lettwra from the hospital on there it’s brilliant get blood test results the same day

Jerryberry profile image
Jerryberry in reply to Goneinsixtyseconds

I am under Addenbrooks and agree My Chart is brilliant

Cascade35 profile image
Cascade35

Hi there. I had to complete an application form for online access and give it to my GP reception form completed. They gave me the form in the first place, it has NHS on it. It took 2-3 weeks to process but I now have access to my test results, letters, prescriptions - I can see it all. Test results come back quicker than you would imagine it is separate to Patient Access, which my GPs practise also uses for booking appointments and ordering prescriptions. For the NHS results I get, it is linked to the NHS app so I login that way. You can’t print anything off from it though. I still need to go to my GP reception to get them to print off blood test results to then take in hand to my PBC Specialist. Likewise, he is unable to access my results on line as he is based away from the area we live in. A little complicated but it does all work.

AnxiousPete profile image
AnxiousPete in reply to Cascade35

I did that but cannot see anything other than my meds and vaccinatiin history.

Cascade35 profile image
Cascade35 in reply to AnxiousPete

If you have completed the form I would suggest going back to your GP reception and asking if there’s a glitch and can they help. I can see referral letters, test results etc

MarkC66 profile image
MarkC66

There must be a way Pete.. I can see everything on the NHS App.. every test result, consultation with my GPs, referrals to specialists, all medication prescribed... etc.. etc... I'm in Kirklees in Yorkshire... it must be driven by each regional NHS district I guess.. I'd call your local GP surgery.. we're lucky, ours is really good...

AnxiousPete profile image
AnxiousPete in reply to MarkC66

Thanks - I am pursuing this as I sm sure it is a tech issue

Milmol14 profile image
Milmol14

I had to write to my GP surgery and request access to my records and within a few weeks I did indeed have access to them. I’m in Essex.

LemonMeringue15 profile image
LemonMeringue15

I'd like to think this was possible but my GP (Leeds) can't even access bloods done my specialist (Bradford)! I have had to get my results emailed to me, so that I can forward them to my surgery. Bonkers!

AnxiousPete profile image
AnxiousPete in reply to LemonMeringue15

Sorry to hear that. It seems that there are various different IT systems that aren't linked.

Pie-eater profile image
Pie-eater

I think it depends on which hospital you’re with. The QEHB has one called My Health, you have to ask your consultant for a code number and then they send you another one in the post. Got mine last week, don’t know if it works yet as I’ve no results to check. It’s not Patient Access, that’s through your GP.

AnxiousPete profile image
AnxiousPete in reply to Pie-eater

Thanks - I am seeing my consultant Monday and will ask

Pie-eater profile image
Pie-eater in reply to AnxiousPete

Forgot to add, it’s not the NHS, it’s a charity run thing.

oap74 profile image
oap74

patient access works for me and evergreen works for my wife and we order our repeat meds as well with these. All the best

AnxiousPete profile image
AnxiousPete in reply to oap74

Yes we've been using Patient Access for years to order repeat prescriptions thanks

oap74 profile image
oap74 in reply to AnxiousPete

Ask your doc to allow access to your medical records that should do it. All the best.

AnxiousPete profile image
AnxiousPete in reply to oap74

Already done that thanks and have access to the portal but as I said the only things visible are meds and vax records - all other sections are empty.

oap74 profile image
oap74 in reply to AnxiousPete

We had to get a form from the surgery to apply, I thought that every body had the right to access this from the beginning of this year.

Yellowsydney profile image
Yellowsydney

I have system online for my GP records, also NHS app, it is up to your GP how much access you have, some only allow prescription request some full access. I also have MYCHART from Addenbrookes however if I have to go to my local hospital in Norwich it's a battle to get anything, I just get told I don't need to know my blood results and have to fight to get them.Good luck

Hilary x

AnxiousPete profile image
AnxiousPete in reply to Yellowsydney

Thanks but that's not the case. It's not up to individual GPs or consultants it is actually government policy since November last year that full on line access to medical records be available. It just seems some practices were / are taking longer to implement and it is complicated by variations with IT systems that can't 'talk' to each other.

digital.nhs.uk/services/nhs....

Woodystar profile image
Woodystar

Left hand and right hand are not using same systems it’s a proper mash up out there 😂

AnxiousPete profile image
AnxiousPete in reply to Woodystar

yes that does seem to be the case

Iro1 profile image
Iro1

The issue of accessing results is a mess, I found that Southampton General allow you to see your results but only ones on a prescribed list. This took about a week of asking to find out. Of course the strap line of 'transparency' 'putting the patient at the centre of the decision making process' all sounds great.

The reality, not so much.

This is no criticism of the individuals in the NHS but there does appear to be a cultural issue with some professionals, mainly consultants, letting go of their 'privilege'. Some might call it turf protection, I never realised how similar consultants are to train drivers, make hay before the AI combine harvester arrives.

I personally cannot wait for AI to be used, liver disease would be a prime beneficiary. Early diagnosis, better treatment, less waiting time and much less psychological pressure worrying about the unknown.

Having lived with a false diagnosis of cirrhosis for 3 years caused by the carelessness of a consultant (if you are reading this you should have used the term F3/F4 ) writing 'on the cusp of cirrhosis' I would personally prefer cold logic over florid Shakespearean language.

I am very grateful to the Nurse Specialist who finally took my phone calls seriously, arranged a fibro within a week, actually pitched up to do the fibro, sat me down and told me that I did not have cirrhosis, never had cirrhosis and even typed up and gave me a letter to tell me that.

All in 20 minutes!

Imagine a health system run by folk like this.

Now on routine 3 year ELF test by GP.

This country lacks effective 'technicians', folk who day in day out perform diagnostic tests. To much emphasis is put on status IMHO.

Of course when this good news happened last march I felt it was really worth making an effort, I no longer had a death sentence.

Currently coming towards the end of my 42 day body reform programme, down from 122 kg BMI 36 to currently 112kg BMI 32.

I have boundless amounts of energy, in fact my wife says it tires her out. I used to sleep most afternoons, not anymore.

My liver is powering me in ways it has not done for years!

joni_56 profile image
joni_56 in reply to Iro1

I'm under Dorchester County Hospital. Eighteen months ago Southampton allowed me to try very expensive drugs for PBC as Urso not working. Was told 4 months ago letter must have got lost in the system. Now I am having to start again. Had biopsy 4 weeks ago. Test sent to Southampton. I am phoning every week, I'm not going to get lost in the system again.

Iro1 profile image
Iro1 in reply to joni_56

Sounds familiar diagnosed with cirhosis but not put on 6 month screens. I kept pointing this out for two years, if I have cirrhosis I get 6 month screen, if I dont I dont. Finally someone the specialist realised this, I think you need an emergency fibroscan, either we should be monitoring you or you do not have cirrhosis.Fibroscan within a week, no cirrhosis, signed off. How much money is wasted by this nonesense an AI consultant would not have computed this outcome.

My experience of Southampton is poor from consultants good from this nurse

1of5 profile image
1of5

[ suspect the medical teams would rather you did know. Takes away their power and you may ask difficult questions about your treatment or lack pf treatment. I phone my consultants PA and request a copy. If that does work I email the consultant their, PA. .cc PALS and the Medical director now I don't seem to have a problem anymore. There your records and only in exception circumstances can they with hold the. For example to release the information may someone else may be placed in a vulnerable position.

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