Hello all, it is the first time I have posted, and so thank you. My husband is on the liver transplant list (since January) and I am his carer. He suffers from an hereditary condition, Hemachromatosis, but by the time it was diagnosed he had liver failure. He had the TIPPS procedure in September following a catastrophic bleed which put him on life support for a couple of weeks. I guess I knew our lives would change when he got out of hospital but I wasn't prepared for this. Obviously the bleeding has stopped but he has returned home a different person. I am heartbroken, he has no energy, very rarely gets dressed spends most of his time in bed... when he does get up he shuffles around. He can't hold a drink in his hands some days because of the tremors. Our hospital visits are little short of traumatic. He now suffers from sporadic episodes of encephalopathy which were alarming at first, and the doctors don't seem to be able to advise me how to manage it. I suppose what I am asking is anyone else been, or indeed is, going through what we are going through? Is this just 'normal' following TIPPS? Although it hasn't been said out loud, my husband is 67 next week and a rare blood group...so I am not sure how/if he will ever get a transplant. Thank you for reading this. SHARRON C.
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