Six month scanxiety.

[Bluegirl52]

Just going through my six month scanxiety. Will have my six month ultrasound and AFP test on July 20. All prayers appreciated. For those who don’t know, I suffer from cirrhosis cause by my right sided heart failure. Yep, the heart affects many of our organs. My cirrhosis is well compensated and will hopefully stay that way as long as my heart failure stays in check. Not such an easy thing at times. I’m treated as anyone else with cirrhosis with semi annual scans and bloodwork. I have an ultrasound and then a ct on the next six month scan. It flip flops like that every six months. I’m seen at Duke University by a hepatologist/trans- plant hepatologist. I would never be approved for a liver transplant because of my heart. They would have to do a liver/heart transplant. Not an easy thing, I’m sure. Anyway, thanks for reading and thanks for all the prayers. Linda

[Bellaranger]

My prayers are with you.

[Bluegirl52 in reply to Bellaranger]

Thank you so much.

[idyllic420]

All the best! How did you find out about your liver cirrhosis? Was it picked up in the blood tests or ultrasound?

[Bluegirl52 in reply to idyllic420]

It was actually picked up by a ct scan (2018) for another problem (gallbladder). Would never have known. All lab tests were normal. Would still not have known, even now. They saw a nodular liver surface but I have had no other problems with my liver. You can google congestive hepatopathy or cardiac cirrhosis to read about it. I had my first open heart surgery when I was 22 and I will be 69 next month. God has blessed me, that’s for sure.

[idyllic420 in reply to Bluegirl52]

Did you also have an ultrasound before CT? If yes, then was it missed in the US?

[Bluegirl52 in reply to idyllic420]

There was an ultrasound done around the same time and the nodular surface wasn’t mentioned. In fact, with the very first CT scan, the radiologist just mentioned a subtlety nodular surface. The first CT scan was done because of very mildly elevated liver enzyme tests. Dr wasn’t concerned about them but I was so the CT was done. At that time, my GP said the nodular surface was probably due to my right sided heart failure. Then a few months later, I had to go to ER because of my heart failure. Another CT scan was done and mildly nod. surface was seen. Went to gastroenterologist and they did an ultrasound and that didn’t pick it up on that. I guess maybe it was so mild then that only a CT could see it. Now it is seen on my ultrasounds but during this time frame my heart failure had gotten worse so that probably affected the liver more. It’s funny but now, the radiologists just mention the nodular surface but never mention whether it is mild or not.

[idyllic420 in reply to Bluegirl52]

I hope that you are keeping well and feeling better now!

[Hidden]

🍀All the best 🤞

[Hidden]

You are in my thoughts and prayerLove and hugs Lynne xxxx ❤️🤗💜🤗

[Dililiver]

Sending prayers and best wishes your way x

[Hidden]

Thinking of you and hope your check up goes well

[Dandy-Jones]

Hi Bluegirl, you sure have a lot going on, I have a good feeling everything will be fine for you. You sound a courageous person and I will send you healing and keep you in my prayers. Love Dandy ❤️

[Worrysome1]

Good luck x

[utep99]

I have been told by a Transplant doctor they do Lungs and Liver all the time. Stay Positive and never give up God loves you!

[Delboytrotter]

🙏🙏 My prayers are with you 🙏🙏

[kensimmons]

First off, I am not a doctor, so I could be misunderstanding something.

Take care, your situation is not a death sentence by any means from what you have written. Quite possibly you can live long and great by just living healthy. Maybe it is a case of you - at this time - not needing a transplant instead of being ineligible?

Liver and heart transplants are done. This link is from five years ago but I am sure the procedure has not been eliminated. 5 and even 10 year survival is over 70% and I would expect results to keep on improving.

Good luck and keep living healthy!

ncbi.nlm.nih.gov/pmc/articl...

[Bluegirl52]

Thank you, everyone, for your thoughts and prayers. It is so nice to be a part of such a caring group of people. God bless each of you.

[Bluegirl52]

I had my liver ultrasound and AFP blood test yesterday at Duke. Cirrhosis is stable with no problems and no tumor. Very well compensated. AFP was normal. Thank y’all for your many prayers and good thoughts. They were very much appreciated. Next exam is in January. Linda