Has anyone else been diagnosed with cirrhosis and not been referred to a liver unit, or put on the transplant list?
After being discharged from hospital last year (alc hepatitis and cirrhosis) I saw the gastrointestinal doctor about 4 months later for the first time and he said 'we're not looking at a transplant'. He gave no explanation as to why. Was I to ill, was I too well...
It was one of those times when there was too much to take in as it was my first appointment with someone who seemed to know what they were talking about, so unfortunately I failed to push him to clarify it for me.
Of course now I fully intend to ask him about it next time I see him.
Oh, and the discharge letter said 'early referral to the liver clinic' about which I've heard nothing. In fact the hospital receptionist seemed quite bemused about this when I called to ask to be put through to the liver clinic, and just put me through to general medicine instead...
But I'm just curious if anyone else is in the same boat.
Do you have cirrhosis but are not on the transplant list? And if so do you know why?