Am I 'Nesting'...

[Chelle_]

So on my drive home from work yesterday I saw 'liver's' in all the clouds, I got home and spent two hours double checking my hospital bag (It's ben packed for 18 months) and then a further hour looking for all the paperwork I was given at my assessment & education days at the hospital.

I went to bed and dreamt my call had come, arrived to the hospital, liver was suitable and checked and that was that really. Well besides the liver being brought down in a lift by a 'diver' who then asked if I would like to have a look at it before they 'pop' it into me!

Curiosity clearly got the better of me in my dream because I ended up gawping at a bloody liver in a brief case....Lol...

So I hope all of your evenings ended up slightly more productive than mine... and I hope whatever your doing you have a positive day

[Millie09]

Hi chelle, seems like your subconscious has livers on your mind.. how funny was that dream. .😂.. maybe (everything crossed) its a sign your time is near, i really really hope so . Have a good day.. linda xxx

[Chelle_ in reply to Millie09]

Ha maybe. Funny I've only had two liver dreams. It was rather amusing seeing all the livers. It was like Chandler in Friends, When he is trying to give up smoking and sees Monica as a giant Cigarette....ha ha. Lets hope it passes soon! x

[Millie09 in reply to Chelle_]

Lol, i have had one i think yet im not on the list as yet, ukeld is not high enough. 🙄. Haha!! Oh my yes, that was so funny, .. well your a real trouper chelle.. hope the wait is nearly over. Xx

[Chelle_ in reply to Millie09]

Me too!

[Millie09 in reply to Chelle_]

I bet!! Xx

[Hidden]

Hmmm, I'm now wondering if your in need of a check-up from the Neck-up. All sounds a little spooky Chelle. Obviously this is your subconscious talking and you transplant must be seriously on your mind. I wish, like you it would come soon as you've been waiting for so long now.

What are you still doing working? You really are naughty. They may think that if your fit enough to work, your fit enough to wait a little longer for your opp.

[Chelle_ in reply to Hidden]

lol. I don't want my head checked - they might lock me up. I think your right - it's been on my mind a little more than normal, however I don't really think it's ever off my mind, I just sometimes end up busier so that I think about it less.

My mum always told me that unless I was dying I should go to school, I suppose I have taken that attitude with me in my adult life. I don't mind working, I work from home Monday and have a half day on Friday and really only work 0730 - 1530 Tuesday - Thursday. I will work from home if I don't feel up to driving. I think being active throughout the day keeps my brain active, Seeing my work friends, having to solve other peoples problems and not think about my own.

I will stop working in August, my contract is up here with my current company and I will be looking to go part time if I need to.

The thing is I don't think I will qualify for any kind of benefit if I stop working and I think I will just sit and be miserable. I was actively encouraged to work if I could. I seem to be different to most people diagnosed with Liver disease.

My comes from blood cancer that I have, my red blood cells over produce and are sticky and thick causing blood clots. To the point that my portal vein has collapsed due to a clot. This ended up starving my liver or food enriched blood - causing my cirrhosis. I get bleeds on my tummy so no longer do fitness (I used to run 15 miles a week) My LFT's are good, the tumours on my liver don't give me too much stick - I am in pain daily but I think I have learnt to get on with it now. I was told that I wouldn't need a transplant for 10 years so when I was requested for assessment I was shocked.

I already lost my career in the Royal Navy and then as a personal trainer and fitness coach to this illness that I plan to keep this job for as long as I can...

Although I would take transplant any day over working x

[vulnerable in reply to Chelle_]

I bet you would Chelle.

[Hidden]

So, in your case your going to need more than just a transplant, your going to need a new portal vein too. I'm sorry, but I have to ask this... if you were to have a liver transplant, what is to stop the new liver from become damage also? I understand that if a person was to be diagnosed with a primary cancer somewhere else in the body, they wouldn't qualify for a transplant.

I am so sorry about the cards that you've been dealt in life. Life can and is very cruel sometimes. You must often wonder what it is you've done to deserve this.

You seem to be such a strong woman, and I like your mum's approach. She's obviously been a good role model for you, and that strength of character is helping you through this difficult time. Good Luck you you Chelle, keep up the fight. xx

[Chelle_ in reply to Hidden]

So I have a rare form of cancer (Myeloproliforative Neoplasm, Polycynthymia Vera) - because it's not aggressive and because although it does develop, it's at such a slow rate that they have agreed to transplant me. I am currently on warfarin and an oral chemotherapy, after transplant I will remain on the warfarin to stop the clotting an will be put on a new drug to supress the production on the bone marrow. The biggest problem with my liver are the extra complications, portal vein, spleen that's 34cm, shoulder pain, etc so the idea is because I am only 37 (32 at diagnosis for my conditions) that I have a life still to live.

Steve lives in Belgium with my daughter, I see them every 6 weeks when they come home because I cant go to see them, we just want our life to start, we have been separated for 3.5 years so far.

It's complicated, I know that if one of my tumours on my liver become cancerous then chances are there will be no transplant for me...

We all take the rough with the smooth.

[Millie09 in reply to Chelle_]

Wow.. speechless. 😳. Your so young chelle, i doubt they will ever transplant me , im too old. 😂😂. Your one hell of a tough cookie ..i will pray for you xxx

[Hidden]

Ooooo I think it's a sign ........ ❤ (had to use the heart, there's no liver icon !)

[Chelle_ in reply to Hidden]

Lol let’s hope Laura x

[Hidden in reply to Chelle_]

I've got everything crossed for you darling x

[LAJ123]

My goodness - what an amazing dream.

Last time I had anything like that was morphine induced post transplant while recovering in intensive care.

Hopefully that's where you have your next weird dream.

Wishing you well.

Jim

[GrannyDoll61]

Hilarious!

[vulnerable]

Awe Chelle you never know bag etc at the ready xxxxx

[Jackinthebox]

You are obviously a real fighter. I admire your spirit to change career and keep on working. You are quite right if you have too much time of your hands to think and worry it is not good. I sincerely hope your dream comes true.👏

[Kimlescam]

Think I should stop moaning - thinking of you and good luck xxx