Hubby is very tired again? Not quite sure what is going on? All he wants to do is sleep, he spent most of Saturday asleep. His blood pressure is all over the place too. Over the past 6 myths or so his blood pressure has been normal/low. Over the last few days it has been high/low/normal.
I remembered that when he had dry kidneys the acute kidney team told us to keep an eye out for him suddenly feeling unwell. We were advised to get his kidney function tested via a blood test. So yesterday I called the dr surgery, they agree this does not sound right, so he has a blood test booked tmrw for full blood count, kidney and liver screening.
Hubby has his six monthly liver ultrasound yesterday too. His last scan showed his liver was about the same as before. As hubby had only given up drinking about a month before, we thought that was ok. However we were hoping that this scan would show an improvement, as he has now not been drinking for 7mths. However the sonographer said his liver was about the same as last time ? Hubby is seeing the liver specialist next month, so we should get a better idea of his condition then
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I would think the scan he had would not show small improvements, but I am sure that as he is doing fantastically well staying sober with your support, his liver will slowly be getting better. Obviously damage is done over a long period of time and the journey back is also a long hard road, but luckily he has you with him.
It sounds like you’re taking really good care of him, getting things checked out when things don’t seem right. Fatigue is par for the course with liver disease and I certainly have days when all I want to do is sleep, his time of year doesn’t help and if I have a busy day I’ll pay for it later. Hopefully it’s just that and he’ll recharge and feel better soon. The trouble is that when he’s sleeping you’re trying to carry everything else so make sure you have time to recharge too.
I was thinking the same thing as Readlots as I was reading your post. You need to make some time for yourself in all this too. It’s really important that you do things you enjoy or otherwise it will get overwhelming. Time with friends and family perhaps? Trip to the spa? Nice shopping trip? or anything else that might be a nice treat. You sound like you are taking good care of your husband so you deserve it. I’d wait for the blood tests and appointment with his consultant before I drew too many conclusions about his state of health. It takes a long time for liver disease to develop so improvements will be slow. 7 months alcohol free will have certainly improved his health that’s for sure. The tiredness goes with the territory I’m afraid, but does improve over time. It’s 10 months since I was diagnosed with cirrhosis. I was pretty unwell at the time with a deep rooted infection so it took a while for everything to settle down. I was very tired when I was first discharged from hospital but have now got into a rhythm and whilst I know my limitations, I feel well and would say I’ve got a pretty normal life. There are still days where I feel wiped, but normally if I’ve been doing more than normal or not slept well for a few nights. The days I feel exhausted are getting less frequent. It was around the 6/7 month mark when I really started to feel better so with the whole year in front of us, I’m sure your husband has a good year ahead.
You should all be proud of yourself dad for not drinking and mum and girls for the support dad must need, as readlots replied it’s par for the course in general and as Dave said they probably couldn’t tell much from the scan as improvements. But if your worried get in touch with your liver team or doctors. Good luck keep up the good work all of you 👍💕.Stay Safe All
Well done to your husband for 7 months abstinence. A few days leading up to his Saturday sleep was he doing extra tasks or walking around more than normal?
I’ve been sober for 7 years and have noticed over that time deterioration in my abilities to do things, fatigue and sleep.
I found the first year the hardest. I was not seeing a Hepatolgist, only a Gastroenterologist Consultant at the time and I was not advised to cut down slowly or anything - just stop drinking as she said it’s alcohol-related. So I did - cold turkey style. In the past year, I nap during the day for a couple of hours and still go to bed at 9.30pm feeling tired. On Saturday, after I finished work (well 3 days in a row) I slept from 6pm until 7am on Sunday.
You’re doing great looking after your husband. Don’t expect too much regarding reversal of liver disease and how it is appearing on scans. Ask his Hepatologist Consultant for his medical opinion on this. You’re entitled to be present in his appointment whether it is at hospital, or as things are at the moment, the six monthly telephone appointment. My partner has sometimes been with me over the years if something is worrying him and he asks my Hep. Consultant questions.
Thank goodness you’ve got a blood test organised by the GP. Get a copy so you can take it to the Liver Specialist. My GP Surgery charges a £1.00 for the hard copy of the blood test results. But every Surgery differs
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