Vitamin d

[Treeclimber62]

Good morning I haven't posted here for a long time so here goes .how do people feel about taking vitamin d .I had a transplant just over 3 years ago so I wear sunscreen factor 50 I've had a couple of spots on my head grafted due to sun damage so also wear a hat most of the time . I'm still working whicheck involves me being out in the elements I'm a tree surgeon . I take vitamin d as a precaution against corvid just wondering what people think about taking this vitamin best wishes to you all

[Don123]

Hi, my hubby has AIH and is prescribed Azathioprine immune suppressant. He hasn't had a liver transplant but has cirrhosis. His consultant told him in May to start taking Vitamin D daily. So far he hasn't had any problems taking it. I'm afraid that's all I can tell you. I would definitely check with your consultant before taking anything though. Kind regards Donna

[Treeclimber62 in reply to Don123]

Thanks for that I'm not taking azathioprine now just tac I will have a word with liver team if I can get hold of them 😂

[Millytam in reply to Treeclimber62]

Hi, I have AIH, also steriod induced diabetes, taking 40mg pred and 2mg Tacrolimus, I take a vitD tablet every morning with my meds.

[Treeclimber62 in reply to Millytam]

Thanks for that i take 5miligramme of tacrolimus I don't take any steroids now I did for about 5 week after transplant and I was injecting insulin after transplant but that resoved itself after a few weeks thank god .hope you are well and again thanks for reply it's nice to hear hoe other people are doing

[Hidden]

Hi,

We would suggest to discuss the use of any additional 'over the counter' supplements with your own liver team and GP to ensure theu are safe and appropriate to take.

Best wishes.

[Treeclimber62 in reply to Hidden]

Thanks for that the problem is getting hold of anyone

[Hidden in reply to Treeclimber62]

It's really difficult now, we do understand. Hopefully you can get an appointment soon.

[Longan]

Sorry for my poor English , 😁

my husband Taking vitamin D .because the blood test show Vitamin D slightly low .

His Dr .does not recommend to take vitamin D Without consulting a doctor . Because if taking too much vitamin D is not good . 🙂

Now next appointment blood test For VitaminD level in next 2 months ,

Dr said If it back to normal level my husband need to stop .

[Treeclimber62 in reply to Longan]

Thanks for your reply so I guess buyer beware

[earthpixie]

I have taken calcichew (vitamin D and calcium)tablets daily since 2012 on the consultants advice-but that might be because a bone scan revealed osteopaenia after my cirrhosis diagnosis. So I would ask your GP-I contact a hepatology specialist nurse for advice-but I realise different hospitals have different systems in place.

[Treeclimber62 in reply to earthpixie]

Thanks for reply I only take 10 ug once a day if I remember I also take a vitamin c tablet I'm 66 now and still working outside so I figure my liver must be OK as I feel fine .this corvid is messing things up for appointments relating to my liver blood test mainly to check tacrolimus levels etc but I'm just thankful I survived liver cancer and the transplant I was so lucky and pretty fit right up to the operation so I think I can count my blessings take care everyone

[earthpixie]

You sound like you’re doing great-I have cirrhosis so I have had telephone appointments-but then had my usual scan today-which had been cancelled 6 months ago.

Take care and hope you get your blood test done soon!

[Treeclimber62 in reply to earthpixie]

Thanks and all the best to you

[alfredthegreat]

Hi there.

Good to know that you're doing well

I'm just over 2 years post transplant now and I take 2 Calceos tablets daily (calcium and Vit D) because I was diagnosed with osteoporosis. The Vit D content doesn't seem to have given me any problems liver wise but it would be as well to check with your liver specialist as we are are all different and take various different meds and some can react on others.

Keep on climbing

Alf.

[Treeclimber62 in reply to alfredthegreat]

Thanks Alfred yes you are so right about us all being different it's funny how we all react differently to medication it's certainly not a case of one size fits all quite fascinating really .hope you are well after the transplant sometimes it's like a dream and it didn't really happen to me until I see the scar 😂 we have a lot to be thankfull for take care Alfred enjoy life

[nutrimar]

I'm nearly 8 years post transplant, and have been taking vitamin D3 since that time. No side effects or contraindications with the meds. Since D3 is naturally made under the skin through direct sunlight, and trasplantees are supposed to keep covered up, there is no other way to get it except by supplementation.

[Treeclimber62]

Thanks for reply very encouraging to hear i must admit I do get some sun exposure through working outside but I use a high factor sunscreen ,factor 50 , and a hat . I intend to work for as long as I'm able to but don't want to put myself in danger by exposture to the sun is think a happy medium is the way

[Winelover]

I can’t quote the source of the advice as I have forgotten but I do know I was advised to take 10ug (micrograms) per day vit D to reduce liver cancer risk as I have cirrhosis. The current interest in vit D to possibly mitigate the effects of COVID-19 is a bonus as far as I’m concerned.

[Treeclimber62]

Thanks even more encouraging think taking vitamin d is good but I will still check with the experts if I can get hold of them

[jazzjam]

At the end of last year I broke the ball of my humerus and other bits. I was advised to take VIT D and calcium together ( not by my liver doc) as I also now have osteopenia, so I did. About 6 months back after one of my usual blood tests my liver doc phoned me at home (he never has before) he told me to stop doing what I was doing with the vit D immediately as I had toxic levels. Even now on my most recent test my vit d is still in the toxic level but has come down slightly. Please please check with your liver doctor first.

[Treeclimber62 in reply to jazzjam]

Thanks for advice will do I wouldn't put my liver in danger I've got a second chance and don't intend to put it in jeopardy

[Catfriend]

Hi, My liver transplant was done about 1-2/2 yrs ago. The doctors actually prescribed a vitamin D + Calcium for me, which I have been taking ever since. When I'm outside I also use a 50 sunscreen and still develop carcinoma on various part of my body. On Tuesday I'm going in to have another removed. Dr. said it is due to some of the medication, which lowers the immune system. Hope this helps! All the best, Inge

[Treeclimber62 in reply to Catfriend]

Thanks very much yes it helps I've also had a couple of skin grafts on my scalp due to sun damage so I'm careful to wear a hat and sunscreen I was on azathioprine as well as tac but they stopped the azathioprine as I don't need it now good luck on Tuesday and take care