Good Evening all
Hope you're doing ok..
Still no diagnosis for my symptoms palms are very red now all the time, lots of pain around ribs and back. My memory is non existent and I have awful mood swings.. don't feel like me at all.. Ferritin is still raised at 450 and LFT's are still raised. Have my next appointment at QE in September. My head feels like is stuffed with cotton wool! horrible head pressure, dizziness/feeling off balance and my vision has gone to crap.. so many eye floaters etc. stools still pale / yellow 2 years in.. all other bloods are fine. Awaiting a referral to gastro also to check for issues in small bowel (colonoscopy was clear..) Still have occasional bright red bleeding from rear. Always very hungry and feel very weak if i dont eat frequently. Obviously feeling much much worse since my liver biopsy last year. It's so embarrassing I cannot form sentences properly and keep mixing my words and getting angry with my son (not like me at all) I don't feel like myself I feel like im living through someone elses eyes.. and just generally feeling very unwell.. I also shake all over like a vibration running through my body.. Tried to tell GP about my symptoms but since they've run all the tests they can there is nothing else they can do.. Just gotta wait until QE in Sept to see if things have progressed or not.
Sorry for long post.