After 15 + months on the transplant li... - British Liver Trust

British Liver Trust

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After 15 + months on the transplant list, I've had my transplant!

taar profile image
taar
21 Replies

Just letting the forum know of my change of status. On my second call to QE, Birmingham, there was an instantly more positive vibe about the possible transplant, and the operation took place about 12 hours after arriving at QE on 24/9/22. Surgeons very pleased with outcome. I have been in little- if any- pain.

Struggled a bit with feeling "spaced out" presumably due to strong meds. Maybe starting to feel more myself. QE is 2 hours each way from home, and it was hard being away from husband and family. After discharge on Sunday 2nd Oct, had to go back to QE on Monday 3rd- clinic, and Thursday 6th, clinic. Believe might not have to go back to QE now until Thurs 13th.

Very grateful for excellent medical care, and love and support from my darling husband and friends and colleagues. So glad to be home and hopefully all positive from here. Don't feel as if I am getting any sleep, but doing ok with distraction of home, and tv etc. One step at a time! Love and best wishes to all.

Taar

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21 Replies
AyrshireK profile image
AyrshireK

Brilliant news, here's to a steady and continued recovery.

Katie x

taar profile image
taar in reply toAyrshireK

Thank you for everything.

Positive001 profile image
Positive001

Wonderful to read happy news today.

Wishing you good health going forward 🤗

Millie09 profile image
Millie09

Thats brilliant 👏..

Im under QE liver unit, not pre or post transplant just 6 mnth check ups and i too was at clinic on 3rd October.

Wishing you a very steady recovery

Linda x

taar profile image
taar in reply toMillie09

Thank you!

Porcupine_Tree profile image
Porcupine_Tree

Great newstaar.

How are you traveling to and from QE?

I or my spouse dont drive. All frirnds familybare working and lving north of Birmingham. We are SE 110 away

Ambulance won't travel out of area. Taxi £400 return. LC,s say its down to me fit travel. Thiis stressing me out.

BTW QE will arrange pick up when "the call comes"

Any way great news for you guys ? Must br such a relief.

PT (33 weeks waiting)

taar profile image
taar in reply toPorcupine_Tree

Daring husband driving. I am 65y pld. Since I was 16y old I knew I could rely on him!

Yellowsydney profile image
Yellowsydney in reply toPorcupine_Tree

Have you looked into local community transport groups, my husband drives for one, much cheaper then a taxi and some trips to hospital are covered by our local doctors, and are much cheaper then a taxi if you dont ask you dont get

Hilary

Lippy42 profile image
Lippy42

Fantastic news to here ..my husband has just been put on the list last week at QE also. Can i ask did your husband stay in birmingham while you were in hospital .i will be the one taking mine when we get the call and planning on staying close by in a b&b .

Good look recovering and all the best to you 🤗🥰

taar profile image
taar in reply toLippy42

We have commitments eg fostering, so couldn't stay overnight.

Rshc profile image
Rshc

wonderful new, it sounds like you are doing amazingly well

Flowergirl24 profile image
Flowergirl24

Well done! Take it nice and slow ok. I had my transplant at the QE nearly two and a half years ago now. The best team ever. I always look forward to going back to clinic just to see everyone.

nutrimar profile image
nutrimar

A warm and hearty welcome to the post transplant club!

Yellowsydney profile image
Yellowsydney

Congratulations on your transplant and heres to an uncomplicated recovery.

Im 5 1/2 years post, the spaced out feeling could well be from your meds but they will be reduced over time. Take things slowly and dont rush your recovery.

If you use Facebook we have a wonderful, friendly and knowledgeable group called liver transplant support uk.

Hilary xxx

marknash67 profile image
marknash67

So please it all gone well. x

Kristian profile image
Kristian

Thats great news 😊😊.

You'll be on weekly appointments for the next couple of weeks and if all is going well those will quickly go to fortnightly, then 3 weekly then 4. So travel will be less burdonsome.

Hope everything comtinues to go well.

Tia2021 profile image
Tia2021

That's wonderful news, wishing you all the best xx

Cosycatbabe profile image
Cosycatbabe

Congratulations on your transplant, now onwards and upwards. Remember to take it easy and its baby steps for the first few months, youll feel invincible because of the meds but rest is key to your recovery. I was very fortunate to only live 10 mins away from my transplant hospital so didnt have the worries of getting to and from appointments, I'm now 2 years post. I wish you a speedy bump free recovery x

Readlots profile image
Readlots

congrstulations! That’s fantastic news. Your body has lots to get used to so you’re bound to feel strange at first. Wishing you a speedy recovery and a happy and healthy life from now on.

ROCKO2231 profile image
ROCKO2231

Awesome news!

LorraineLouise profile image
LorraineLouise

so very happy for you !!! Wishing you a speedy and easy recovery .

Lorraine Louise

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