Do you find........

[Bs1524]

That the side effects of cirrhotic work in a cycle? After posting how my husband has gone 360 in his mental attitude I have started to notice these last couple of days subtle changes. Last night he said he felt shaky and not right and he said he hadn’t been to the loo. We have upped his lactulose and hopefully we can get the better of it this time round.

His mouth ulcers/blisters and his hypersalivation are really messing with his head and he is finding them debilitating. I am a bit cross as I mentioned this back in March.

Do you find that things come and go?

Sorry for the long post. Hope you all are ok.

[Hidden]

Hi

The ulcers I did not suffer from.

The HE could change daily, I never did find any regular pattern.

I could be fine then within a few hours have collapsed, it made going anywhere a real challenge as a change in routine could trigger an attack sometime just small

Not much help sorry

David

[Bs1524 in reply to Hidden]

Thanks David it is really dragging him down I did get a bit stern with him as I didn’t want spiralling down into depression again but at least he was aware of the changes in him this time x

[AyrshireK in reply to Bs1524]

I did warn you that this was the way it goes. It's very much a roller coaster, when they feel good they feel they can conquer the world then when they take a dip it can hit them really hard.

You just have to get into the mindset of living each day as it comes - my hubby will often say I don't know what each day will bring till I am up and about on that day. He doesn't do planning because he doesn't know what each day will bring.

My hubby was told he had adjustment depression by the psychiatric doctor at transplant unit. He was really depressed for years, always harking back to the man he was before illness, the guy who could walk 100's of miles in a weekend every weekend of the year. Somehow we've got him round to sort of accepting his 'new normal' - he revels in a nice short walk out. Still gets really low when he sees events going on that he would have loved to have taken part in but you have to get on with life as it is now. He's not 100% over it by any means, some days are better than others but like I say it's a roller coaster.

Hubby always has this underlying fatigue but if he feels a bit brighter he'll seize the moment and go out a walk or write the letter he's been composing in his head overnight - he does it then or the notion, the energy or the drive to do so could be lost later in the day.

It's tough on you both/us both. It's draining to have to keep trying to buck them up when you also arn't living the life you planned but hopefully you do have that chance of transplant assessment coming up.

Rooting for you both.

Katie

[Bs1524 in reply to AyrshireK]

Katie thank you I did remember you said it being a rollercoaster. I so agree how tough it is he thinks I don’t understand how unwell he is but I really do get it although this from a man two days ago who said he felt a fraud because he felt well (ignoring how many naps he needed). I don’t mean to be poor me but I have some health issues of my own no where near as serious plus I work full time and take of everything to do with the house, cars, life in general and caring long distance for my brother and not least my husband.

Sometimes I could scream and others cry it is really tough on everyone isn’t it?

Take care x