The steroids are usuall tapered down gradually over about 2 or 3 months by about 5mg each time. I never really noticed any difference and coming off them didnt worsen anything. I suspect what you are feeling is just part of the healing process. However, it's always worth raising with the consultants at clinic, particularly if it's something new. Obviously if it gets worse or you start showing any other signs that you should looking out for then speak to the coordinators to check.
Only to add to Kristian's comments that steroids are usually tapered down 5mg at a time over several months - I'd check with your consultants that they meant you to go this fast and if the pain changes or get's worse then straight back to the clinic coordinator.
I was told the pain was due to the nerves healing and it would take 5/6 months to get better.
Like Kristian, for me reducing steroids had no adverse effects I’m glad to say, in fact for me my hallucinations stopped when I finished with the steroids - coincidence?
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